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自由存在:基于艺术的关系关怀在一个充满活力的痴呆症社区中的体验。

Free to be: Experiences of arts-based relational caring in a community living and thriving with dementia.

机构信息

7991York University, Toronto, ON, Canada.

8430University of Waterloo, Waterloo, ON, Canada.

出版信息

Dementia (London). 2022 Jan;21(1):61-76. doi: 10.1177/14713012211027016. Epub 2021 Jun 24.

DOI:10.1177/14713012211027016
PMID:34166151
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8739588/
Abstract

AIM

To present findings about experiences of relational caring at an arts-based academy for persons living with dementia.

BACKGROUND

There is a compelling call and need for connection and relationships in communities living with dementia. This study shares what is possible when a creative arts-based academy for persons living with dementia grounded in relational inquiry and caring focuses on relationships through the medium of the arts.

DESIGN

A qualitative phenomenological methodology (informed by van Manen) was used to answer the research question, "What is it like to experience relational caring at an arts-based academy for persons living with dementia?" We address two research objectives: (1) to explore how relationships are experienced when a relational caring philosophy underpins practice, including arts-based engagements; and (2) to understand the meaning of relationships that bring quality to day-to-day living.

METHODS

Twenty-five participants were recruited from the Academy and interviewed in one-to-one in-depth interviews or small groups. Participants included five persons living with dementia, eight family members, four staff, five artists, one personal support worker, and two volunteers. Participants were asked to describe their experiences of relational caring or relationships in the Academy space.

FINDINGS

Three thematic patterns emerged, which address the research objectives.Relational caring is experienced when:;; and.

CONCLUSIONS

Findings contribute to the growing body of knowledge about both relational caring and arts-based practices that call forth a different ethic of care-one that is relational, inclusive, and intentional. Findings also shed light on what is possible when a relational caring philosophy underpins arts-based practices-everyone thrives.

摘要

目的

介绍基于艺术的痴呆症患者学院中关系关怀的体验发现。

背景

在患有痴呆症的社区中,人们强烈呼吁和需要建立联系和关系。本研究通过基于关系探究和关怀的痴呆症患者创意艺术学院分享了什么是可能的,该学院通过艺术媒介关注关系。

设计

采用定性现象学方法(受范梅南启发)回答研究问题,“在基于艺术的痴呆症患者学院中体验关系关怀是什么样的?”我们解决了两个研究目标:(1)探讨当关系关怀哲学为实践提供基础时,包括基于艺术的参与,关系是如何体验的;(2)理解为日常生活带来质量的关系的意义。

方法

从学院招募了 25 名参与者,并在一对一的深入访谈或小组中进行了访谈。参与者包括五名患有痴呆症的人、八名家庭成员、四名工作人员、五名艺术家、一名个人支持工作者和两名志愿者。参与者被要求描述他们在学院空间中关系关怀或关系的体验。

结果

出现了三个主题模式,分别解决了研究目标。当:;;和时,可以体验到关系关怀。

结论

研究结果为关系关怀和基于艺术的实践的不断增长的知识体系做出了贡献,这些实践呼吁出一种不同的关怀伦理——关系、包容和有意的。研究结果还揭示了当关系关怀哲学为基于艺术的实践提供基础时,每个人都茁壮成长,这是可能的。

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Dementia (London). 2021 Apr;20(3):1144-1153. doi: 10.1177/1471301219895647. Epub 2019 Dec 24.
2
Integrating Citizenship, Embodiment, and Relationality: Towards a Reconceptualization of Dance and Dementia in Long-Term Care.将公民身份、体现和关系性融为一体:重新构想长期护理中的舞蹈与痴呆症。
J Law Med Ethics. 2018 Sep;46(3):717-723. doi: 10.1177/1073110518804233.
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The arts and dementia: Emerging directions for theory, research and practice.艺术与痴呆症:理论、研究与实践的新方向
Dementia (London). 2018 Aug;17(6):641-644. doi: 10.1177/1471301218772972. Epub 2018 Apr 30.
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Broadening the debate on creativity and dementia: A critical approach.拓展关于创造力与痴呆症的辩论:一种批判性方法。
Dementia (London). 2019 Oct-Nov;18(7-8):2799-2820. doi: 10.1177/1471301218760906. Epub 2018 Apr 9.
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Building creative communities of care: Arts, dementia, and hope in the United States.构建富有创造力的关怀社区:美国的艺术、痴呆症与希望
Dementia (London). 2018 Aug;17(6):744-754. doi: 10.1177/1471301217740959. Epub 2017 Nov 23.
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Global perspectives on dementia and art: An international discussion about changing public health policy.关于痴呆症与艺术的全球视角:一场关于改变公共卫生政策的国际讨论。
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Gerontologist. 2018 Mar 19;58(2):261-269. doi: 10.1093/geront/gnw196.
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Relational citizenship: supporting embodied selfhood and relationality in dementia care.关系性公民身份:在痴呆症护理中支持具身自我与关系性
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Citizenship, human rights, and dementia: Towards a new embodied relational ethic of sexuality.公民身份、人权与痴呆症:迈向一种新的具身化性取向关系伦理。
Dementia (London). 2016 May;15(3):315-29. doi: 10.1177/1471301216636258.