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慢性病作为文化的中断:慢性病对宗教和文化实践的影响。

Chronic illness as cultural disruption: The impact of chronic illness on religious and cultural practice.

机构信息

School of Sociology and Social Policy, Law and Social Sciences Building, University of Nottingham, University Park Campus, Nottingham, UK.

Department of Cardiovascular Sciences, College of Life Sciences, University of Leicester and John Walls Renal Unit, University Hospitals of Leicester NHS Trust, Leicester, UK.

出版信息

Sociol Health Illn. 2024 Nov;46(8):1901-1922. doi: 10.1111/1467-9566.13816. Epub 2024 Aug 14.

DOI:10.1111/1467-9566.13816
PMID:39141667
Abstract

The relationship between religion and health tends to be framed positively. Religion has been found to act as a coping mechanism and source of support in times of ill health. In this paper, we focus on the disruptive effect of chronic illness on religious practice and cultural engagement. Drawing on interviews with ethnic minority adults with end-stage kidney disease, who also identify as religious, we introduce the concept 'cultural disruption'. While religious practice and belief was found to provide strength and comfort we also found that chronic illness had a disruptive impact on religious and cultural practice that participants attempted to manage. To highlight the potential disruptive effect of chronic illness on religious faith and cultural engagement we identify three elements of cultural disruption-disruption to religious practice, disruption to sense of self and identity and disruption to wellbeing. We conclude by suggesting that understanding and accounting for the potential of cultural disruption when diagnosing, treating and supporting people with chronic illness offers an alternative entry point to the life-worlds of patients who identify as religious and the things that are important to them.

摘要

宗教与健康之间的关系往往被正面描述。研究发现,宗教在身体健康出现问题时可以作为一种应对机制和支持来源。在本文中,我们专注于慢性病对宗教实践和文化参与的破坏性影响。我们通过对少数民族终末期肾病患者(他们也认同自己的宗教信仰)的访谈,引入了“文化破坏”的概念。虽然宗教实践和信仰被发现可以提供力量和安慰,但我们也发现,慢性病对参与者试图管理的宗教和文化实践产生了破坏性影响。为了强调慢性病对宗教信仰和文化参与的潜在破坏性影响,我们确定了文化破坏的三个要素——宗教实践的破坏、自我意识和身份的破坏以及幸福感的破坏。最后,我们建议在诊断、治疗和支持患有慢性病的患者时,理解和考虑文化破坏的可能性,为认同宗教的患者及其重视的事物提供一个进入他们生活世界的替代切入点。

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