Cobianchi Lorenzo, Dal Mas Francesca, Pizzocaro Erica, Tripepi Marzia, Butturini Giovanni
Department of Clinical, Surgical, Diagnostic & Pediatric Sciences, University of Pavia, Pavia, Italy.
General Surgery Department, Fondazione IRCCS Policlinico San Matteo, Pavia, Italy.
Mhealth. 2023 Mar 9;9:16. doi: 10.21037/mhealth-22-48. eCollection 2023.
Pancreatic cancer is a malignant and complex tumor that often leads to an adverse prognosis. Patients need to face a challenging treatment path, which involves highly-specialized multidisciplinary professionals. The complexity of the disease requires the development of dedicated tools to support patients in their care journey. Co-production stands as a valuable strategy in oncological care to engage patients in understanding their care journey and behaving accordingly to get the best possible clinical outcome.
The non-profit association Unipancreas, active in promoting the latest advances in pancreatic cancer care and in supporting pancreatic cancer patients, has partnered with a multidisciplinary group of professionals to conceive the brand new program "Pancreas Plus" to employ a co-design, co-learning, and co-production path to design an app devoted to pancreatic cancer patients to assist them during their treatment and follow-up journey. The app, which is the outcome of a multi-stakeholder engagement project, offers health information and medical advice specifically tailored on the pancreatic cancer disease. The article reports the research protocol, which may be replicated for the design of other e-health tools focusing on different conditions.
The study's output will be an app that sees the pancreatic cancer patient as the main beneficiary but which can gather and address the interests and needs of all meaningful stakeholders, including clinicians, researchers, healthcare and educational institutions, and non-profit associations.
Given the type of study, no registration is required.
胰腺癌是一种恶性且复杂的肿瘤，常常导致不良预后。患者需要面对充满挑战的治疗过程，这涉及高度专业化的多学科专业人员。疾病的复杂性需要开发专门的工具来支持患者的治疗过程。共同生产是肿瘤护理中的一项有价值的策略，可让患者参与了解其护理过程并相应行事，以获得最佳的临床结果。
活跃于推广胰腺癌护理最新进展并支持胰腺癌患者的非营利性协会Unipancreas，已与多学科专业人员团队合作，构思全新的“胰腺加”项目，采用共同设计、共同学习和共同生产的路径，设计一款专门针对胰腺癌患者的应用程序，以在其治疗和随访过程中提供帮助。该应用程序是一个多利益相关者参与项目的成果，提供专门针对胰腺癌疾病量身定制的健康信息和医疗建议。本文报告了研究方案，该方案可复制用于设计针对不同病症的其他电子健康工具。
该研究的成果将是一款以胰腺癌患者为主要受益对象，但能收集并满足所有重要利益相关者（包括临床医生、研究人员、医疗保健和教育机构以及非营利性协会）的利益和需求的应用程序。
鉴于研究类型，无需注册。
