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患者激活:慢性肾脏病有效自我管理的基石?

Patient Activation: The Cornerstone of Effective Self-Management in Chronic Kidney Disease?

作者信息

Lightfoot Courtney J, Nair Devika, Bennett Paul N, Smith Alice C, Griffin Anthony D, Warren Madeleine, Wilkinson Thomas J

机构信息

Leicester Kidney Lifestyle Team, Department of Health Sciences, University of Leicester,Leicester LE1 7RH, UK.

Leicester NIHR Biomedical Research Centre, Leicester LE5 4PW, UK.

出版信息

Kidney Dial. 2022 Mar;2(1):91-105. doi: 10.3390/kidneydial2010012. Epub 2022 Mar 3.

DOI:10.3390/kidneydial2010012
PMID:37101653
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10127536/
Abstract

The importance of patient activation (i.e., the knowledge, skills, and confidence one has in managing one's own healthcare) in people with long-term conditions, including kidney disease, is growing. Enabling and empowering patients to take a more active role in their health and healthcare is the focus of person-centred care. Patient activation is recognised as a key construct of self-management, as to effectively self-manage a long-term condition, it is required to enable individuals to actively participate in treatment decisions, prevent complications, and manage risk factors. Identifying an individual's level of activation can help guide and tailor care, and interventions aimed at increasing patient activation may improve patient engagement and health outcomes. In this review, we explore the concepts of patient activation and self-management, the relationship between patient activation and self-management, interventions aimed at improving these, and what these mean to people living with kidney disease.

摘要

患者激活(即个人在管理自身医疗保健方面所具备的知识、技能和信心)在包括肾病在内的慢性病患者中愈发重要。使患者能够并授权他们在自身健康和医疗保健中发挥更积极的作用是以人为本的医疗保健的核心。患者激活被视为自我管理的关键要素,因为要有效自我管理慢性病,就需要使个人能够积极参与治疗决策、预防并发症并管理风险因素。确定个人的激活水平有助于指导和定制护理,旨在提高患者激活水平的干预措施可能会改善患者参与度和健康结果。在本综述中,我们探讨患者激活和自我管理的概念、患者激活与自我管理之间的关系、旨在改善这些方面的干预措施,以及这些对肾病患者意味着什么。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/25ee/10127536/d55e863b2b25/nihms-1890458-f0003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/25ee/10127536/d7141cecece9/nihms-1890458-f0002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/25ee/10127536/d55e863b2b25/nihms-1890458-f0003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/25ee/10127536/d7141cecece9/nihms-1890458-f0002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/25ee/10127536/d55e863b2b25/nihms-1890458-f0003.jpg

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本文引用的文献

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Integr Healthc J. 2020 Jul 10;2(1):e000032. doi: 10.1136/ihj-2019-000032. eCollection 2020.
2
Patient activation and its association with symptom burden and quality of life across the spectrum of chronic kidney disease stages in England.英格兰范围内慢性肾脏病各阶段患者的激活及其与症状负担和生活质量的关系。
BMC Nephrol. 2022 Jan 26;23(1):45. doi: 10.1186/s12882-022-02679-w.
3
Patient Activation Measure in Dialysis-Dependent Patients in the United States.
慢性肾病患者的生活:患者的未来展望与预后需求——一项定性研究
BMC Nephrol. 2025 Jul 1;26(1):301. doi: 10.1186/s12882-025-04243-8.
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Use, Usability, and Experience Testing of a Digital Health Intervention to Support Chronic Kidney Disease Self-Management: Mixed Methods Study.一项支持慢性肾脏病自我管理的数字健康干预措施的使用、可用性及体验测试:混合方法研究
J Med Internet Res. 2025 Jun 19;27:e75845. doi: 10.2196/75845.
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Self-management interventions for adult haemodialysis patients: a scoping review of randomized controlled trials.成人血液透析患者的自我管理干预措施:随机对照试验的范围综述
BMC Nephrol. 2025 Jun 13;26(1):285. doi: 10.1186/s12882-025-04229-6.
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