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从创伤知情角度出发,探讨医务工作者对青少年癌症患者知情同意意识和决策支持需求的实践。

Medical staff's sense of awareness of informed consent for adolescent cancer patients and the need for decision-making support practiced from the perspective of trauma-informed approach.

机构信息

National Center for Child Health and Development, Setagaya-ku, Tokyo, Japan.

Division of Consultation liaison Department of Psychosocial Medicine, 2-10-1 Okura, Setagaya- ku, Tokyo, 157-8535, Japan.

出版信息

BMC Med Ethics. 2023 May 6;24(1):28. doi: 10.1186/s12910-023-00907-y.

Abstract

It has not been established how to assess children's and adolescents' decision-making capacity (DMC) and there has been little discussion on the way their decision-making (DM). The purpose of this study was to examine actual situation and factors related to difficulties in explaining their disease to adolescent cancer patients or obtaining informed consent (IC). The cross-sectional questionnaire survey was conducted. Physicians who have been treating adolescent cancer patients for at least five years answered a self-administered questionnaire uniquely developed about clinical difficulties in explaining, IC and factors related patient's refusal of medical treatment (RMT). Descriptive statistics for each item and a polychoric correlation analysis of the problems and factors related to the explanation were conducted. As a result, fifty-six physicians were participated (rate of return: 39%). Explaining the disease and treatment to patients (83.9%), IC to patients (80.4%), and explaining the disease and treatment to parents (78.6%) was particularly problematic. Difficulties to provide support related with patient's refusal of medical treatment and to explain disease and treatment for patient and parents were related to difficulties obtaining IC for the patient. Conclusion: There are clinically difficult to explain for the patient or parents and to obtain IC for the patient. It is necessary to establish a disease acceptance assessment tool for the adolescence generation so that it can be applied in the field.

摘要

尚未确定如何评估儿童和青少年的决策能力(DMC),也很少讨论他们的决策方式(DM)。本研究旨在调查青少年癌症患者在解释疾病和获得知情同意(IC)方面存在困难的实际情况和相关因素。采用横断面问卷调查法,对至少治疗过 5 年青少年癌症患者的医师进行了一项关于解释、IC 及与患者拒绝治疗(RMT)相关因素的临床困难的自填式问卷。对每个项目进行描述性统计分析,并对解释方面的问题和相关因素进行多元相关分析。结果共 56 名医师参与(回复率:39%)。向患者解释疾病和治疗(83.9%)、向患者解释 IC(80.4%)和向家长解释疾病和治疗(78.6%)特别困难。与患者拒绝治疗相关的支持提供困难以及向患者和家长解释疾病和治疗与患者获得 IC 的困难有关。结论:存在向患者或家长解释困难和难以获得患者 IC 的临床问题。有必要为青少年一代建立一种疾病接受评估工具,以便在该领域应用。

相似文献

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[The origin of informed consent].[知情同意的起源]
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本文引用的文献

1
The age of adolescence.青春期。
Lancet Child Adolesc Health. 2018 Mar;2(3):223-228. doi: 10.1016/S2352-4642(18)30022-1. Epub 2018 Jan 30.

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