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本文引用的文献

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Safety and efficacy of abatacept in early diffuse cutaneous systemic sclerosis (ASSET): open-label extension of a phase 2, double-blind randomised trial.阿巴西普治疗早期弥漫性皮肤系统性硬化症的安全性和有效性(ASSET):一项2期双盲随机试验的开放标签扩展研究
Lancet Rheumatol. 2020 Dec;2(12):e743-e753. doi: 10.1016/S2665-9913(20)30237-X. Epub 2020 Oct 19.
2
Symptom experience of limited cutaneous systemic sclerosis from the Patients' perspective: A qualitative study.局限性皮肤系统性硬皮病患者的症状体验:一项定性研究。
Semin Arthritis Rheum. 2022 Feb;52:151926. doi: 10.1016/j.semarthrit.2021.11.003. Epub 2021 Nov 7.
3
Rehabilitation Interventions in Systemic Sclerosis: A Systematic Review and Future Directions.系统性硬化症的康复干预措施:系统评价与未来方向。
Arthritis Care Res (Hoboken). 2022 Jan;74(1):59-69. doi: 10.1002/acr.24737. Epub 2021 Dec 22.
4
Intensive and app-delivered occupational therapy to improve upper extremity function in early diffuse cutaneous systemic sclerosis: a pilot two-arm trial.强化和应用程序提供的职业治疗改善早期弥漫性皮肤系统性硬化症的上肢功能:一项试点双臂试验。
Rheumatology (Oxford). 2021 Nov 3;60(11):5002-5011. doi: 10.1093/rheumatology/keab339.
5
The efficacy of exergaming in people with major neurocognitive disorder residing in long-term care facilities: a pilot randomized controlled trial.长期护理机构中患有重大神经认知障碍的人群中,运动游戏的疗效:一项初步随机对照试验。
Alzheimers Res Ther. 2021 Mar 30;13(1):70. doi: 10.1186/s13195-021-00806-7.
6
Health-related quality of life in patients with systemic sclerosis: evolution over time and main determinants.系统性硬皮病患者的健康相关生活质量:随时间的演变和主要决定因素。
Rheumatology (Oxford). 2021 Aug 2;60(8):3646-3655. doi: 10.1093/rheumatology/keaa827.
7
Incidence and prevalence of systemic sclerosis and systemic sclerosis with interstitial lung disease in the United States.美国系统性硬化症和系统性硬化症伴间质性肺病的发病率和患病率。
J Manag Care Spec Pharm. 2020 Dec;26(12):1539-1547. doi: 10.18553/jmcp.2020.20136. Epub 2020 Sep 30.
8
Exergaming for people with major neurocognitive disorder: a qualitative study.伴重大神经认知障碍者的健身游戏:定性研究。
Disabil Rehabil. 2022 May;44(10):2044-2052. doi: 10.1080/09638288.2020.1822934. Epub 2020 Sep 23.
9
Effect of video-based exergaming on arm and cognitive function in persons with multiple sclerosis: A randomized controlled trial.基于视频的健身游戏对多发性硬化症患者上肢和认知功能的影响:一项随机对照试验。
Mult Scler Relat Disord. 2020 May;40:101966. doi: 10.1016/j.msard.2020.101966. Epub 2020 Jan 24.
10
Comparison of the effects of two different exergaming systems on balance, functionality, fatigue, and quality of life in people with multiple sclerosis: A randomized controlled trial.两种不同运动游戏系统对多发性硬化症患者平衡能力、功能、疲劳及生活质量影响的比较:一项随机对照试验。
Mult Scler Relat Disord. 2020 Apr;39:101902. doi: 10.1016/j.msard.2019.101902. Epub 2019 Dec 21.

系统性硬化症患者上肢运动的健身体验。

Experiences of Exergaming for Upper Extremity Exercises in People With Systemic Sclerosis.

机构信息

University of Michigan, Ann Arbor, USA.

出版信息

OTJR (Thorofare N J). 2023 Oct;43(4):665-675. doi: 10.1177/15394492231172934. Epub 2023 May 10.

DOI:10.1177/15394492231172934
PMID:37162267
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10527854/
Abstract

Impaired upper extremity (UE) function has limited activities of daily living in people with systemic sclerosis (SSc). Exergaming, a combination of gaming and exercises, could be a novel way to improve UE exercise engagement. The objective of this study was to examine the usability of exergaming and to investigate participant experiences after exergaming among people with SSc. Both quantitative and qualitative data were collected. Participants completed questionnaires regarding the usability of exergaming. Semi-structured interviews were conducted directly after exergaming. Descriptive statistics and thematic content analysis were performed. Twenty participants with SSc participated. Exergaming was highly acceptable with a good System Usability Scale score (M = 71.6 ± 9.9). Participants described exergaming as motivating with potential physical and nonphysical benefits. Although results were generally positive, participants expressed some barriers and temporary side effects of using exergaming and needs for improvement. This work stands to inform future exergaming interventions in people with SSc.

摘要

上肢功能障碍会限制系统性硬化症(SSc)患者的日常生活活动。运动游戏是游戏和运动的结合,可能是一种改善上肢运动参与的新方法。本研究的目的是检验运动游戏的可用性,并调查 SSc 患者运动游戏后的体验。同时收集了定量和定性数据。参与者完成了关于运动游戏可用性的问卷。运动游戏后直接进行半结构化访谈。进行描述性统计和主题内容分析。共有 20 名 SSc 患者参与。运动游戏的系统可用性得分较高(M=71.6±9.9),非常受欢迎。参与者表示运动游戏具有激励性,可能具有身体和非身体上的益处。尽管结果总体上是积极的,但参与者表示在使用运动游戏时存在一些障碍和暂时的副作用,并需要改进。这项工作为未来在 SSc 患者中开展运动游戏干预提供了信息。