Matschull Lauren, Martin Nicole, Goday Praveen, Chugh Ankur
From the Department of Clinical Nutrition, Children's Wisconsin, Milwaukee, WI.
Department of Pediatric Gastroenterology, Medical College of Wisconsin, Milwaukee, WI.
JPGN Rep. 2022 Jun 21;3(3):e218. doi: 10.1097/PG9.0000000000000218. eCollection 2022 Aug.
The only treatment for celiac disease is lifelong adherence to a gluten-free diet (GFD), and the best way to achieve adherence is through education from a registered dietitian who has expertise in celiac disease. Education practices on the GFD vary across the world and are not well studied. For over 10 years, our institution has conducted in-person small group education sessions for 1-3 patients and their families. These classes are dietitian led, didactic, and discussion based. Pre- and postsurveys done for the past 5 years showed that families' knowledge of celiac disease increased significantly and 96% of patients age 8 and above benefited from attendance. These data show that in-person, small group classes are effective for families and patients over 7 years of age. Additional study is needed to compare various models of delivering education on the GFD (especially telemedicine options), their efficacy, and barriers to delivery.
乳糜泻的唯一治疗方法是终身坚持无麸质饮食（GFD），而实现坚持的最佳方法是接受来自具有乳糜泻专业知识的注册营养师的教育。全球范围内关于GFD的教育实践各不相同，且研究不足。十多年来，我们机构为1至3名患者及其家属开展了面对面的小组教育课程。这些课程由营养师主导，以讲授和讨论为基础。过去5年进行的课前和课后调查显示，家庭对乳糜泻的了解显著增加，8岁及以上的患者中有96%从参加课程中受益。这些数据表明，面对面的小组课程对7岁以上的家庭和患者有效。需要进一步研究以比较提供GFD教育的各种模式（尤其是远程医疗选项）、它们的效果以及实施障碍。
