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教育干预改善了乳糜泻患者父母的知识、态度和行为(KAP)以及患者对无麸质饮食的依从性。

Educational Intervention Improved Parental Knowledge, Attitudes, and Practices (KAP) and Adherence of Patients with Celiac Disease to Gluten-Free Diet.

作者信息

Elsahoryi Nour Amin, Altamimi Eyad, Subih Hadil Shafee, Hammad Fwziah Jammal, Woodside Jayne V

机构信息

Nutrition Department, Faculty of Pharmacy and Medical Sciences, University of Petra, P.O. Box 961343, Amman 11196, Jordan.

Pediatric Department-Faculty of Medicine, Jordan University of Science and Technology, P.O. Box 3030, Irbid 21210, Jordan.

出版信息

Int J Food Sci. 2020 Sep 17;2020:8850594. doi: 10.1155/2020/8850594. eCollection 2020.

Abstract

BACKGROUND

Raising the knowledge level though education for a celiac disease patient's parents could improve the parent's adherence and practice and consequently recover the patient's adherence and symptoms and increase the patient's compliance.

AIM

The present study was aimed at assessing the knowledge, attitudes, and practices (KAP) of parents who have children with celiac disease aged from 2 to 15 years old and the change in self-reported patient's adherence pre-/posteducational intervention.

METHOD

This intervention study was designed as a quasiexperiment with evaluation pre-/post intervention analyses. Two educational sessions were carried for the parents of CD patients. A reliable and valid questionnaire was used to assess all independent variables pre-/post intervention. The parents were asked to complete the questionnaire pre and post the education sessions. The time between the sessions was two weeks.

RESULTS

100 parents were recruited, and 40 parents participated and completed the study. Baseline parent's knowledge was significantly associated with the source of information ( value = 0.02), while the patient's adherence was associated with the onset of disease ( value = 0.04). There were significant differences in the parent's KAP and patient's adherence between pre- and posteducational intervention ( value was ≤0.001, for all variables).

CONCLUSION

Based on the results, this study suggested that the educational intervention increased the parent's KAP and improved the patient's adherence to the gluten-free diet significantly, which may lead to improvement in the celiac disease patients' health outcomes.

摘要

背景

通过对乳糜泻患者父母进行教育来提高其知识水平,可增强父母的依从性和实际行动,从而恢复患者的依从性、改善症状并提高患者的顺应性。

目的

本研究旨在评估患有乳糜泻的2至15岁儿童的父母的知识、态度和行为(KAP),以及教育干预前后自我报告的患者依从性变化。

方法

本干预研究设计为准实验,进行干预前/后评估分析。为乳糜泻患者的父母举办了两次教育课程。使用可靠且有效的问卷在干预前/后评估所有自变量。要求父母在教育课程前后完成问卷。两次课程之间的时间间隔为两周。

结果

招募了100名父母,40名父母参与并完成了研究。基线时父母的知识与信息来源显著相关(值=0.02),而患者的依从性与疾病发作相关(值=0.04)。教育干预前后父母的KAP和患者的依从性存在显著差异(所有变量的值均≤0.001)。

结论

基于研究结果,本研究表明教育干预提高了父母的KAP,并显著改善了患者对无麸质饮食的依从性,这可能会改善乳糜泻患者的健康状况。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6785/7525320/c2e9f6a7dddb/IJFS2020-8850594.001.jpg

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