Sohkhlet Gracia, Thakur Kavita, David Sudeep I, Verma Prerna, Jadav Vallari, S Johnson, Palal Deepu, Borah Nirankush, Banerjee Amitav, Nallapu Sandeep
Department of Community Medicine, Dr. DY Patil Medical College, Hospital and Research Centre, Dr. DY Patil Vidyapeeth, Pune, IND.
Department of Pharmacology, Dr. DY Patil Medical College, Hospital and Research Centre, Dr. DY Patil Vidyapeeth, Pune, IND.
Cureus. 2023 Apr 10;15(4):e37410. doi: 10.7759/cureus.37410. eCollection 2023 Apr.
Stroke causes a high burden of death and disability all over the world. The majority of stroke survivors continue to have difficulties, and their families must shoulder a considerable portion of the expenditures of ongoing rehabilitation and long-term care. In India, stroke rehabilitation is still underachieved due to various reasons leading to delay or incomplete recovery of the patients thus adding up more burden on the caregivers. Thus, studying the caregiver burden of stroke rehabilitation will help policymakers tackle this issue faced by our lower economically challenged citizens.
The objective is to measure the perceived burden on caregivers during stroke rehabilitation.
The observational study was conducted by interviewing the stroke survivors' caregivers and visiting the physiotherapy OPD using the caregiver burden scale/questionnaire.
The study had 76 caregivers, 51.32% were women and 48.68% were men. The average age for caregivers was 42 years and 55 years for patients. The average duration of giving care was six months. The perceived caregiver burden score was low (mean-19.61) suggesting that not all assistance is associated with stress. The correlation of each burden measure with Modified Rankin Scale for disability is significantly correlated (r=0.7, P<0.0001). Further investigation revealed that caregivers had considerably higher levels of stress when the patient needed to exercise, walk or use the restroom. A low yearly income, a higher secondary education, and a small number of family members were shown to be connected with individuals who scored the highest on stress.
Based on this study, we conclude that people with low income residing in nuclear families require more support for caregiving during rehabilitation. We recommend that health and welfare policy measures be developed to lessen caregiver burden in order to improve caregivers' post-stroke experiences.
中风在全球造成了沉重的死亡和残疾负担。大多数中风幸存者仍面临困难，其家庭必须承担持续康复和长期护理的相当一部分费用。在印度，由于各种原因，中风康复仍未达标，导致患者延迟康复或恢复不完全，从而给护理人员增加了更多负担。因此，研究中风康复护理人员的负担将有助于政策制定者解决我们经济上处于较低困境的公民所面临的这一问题。
目的是测量中风康复期间护理人员的感知负担。
通过使用护理人员负担量表/问卷对中风幸存者的护理人员进行访谈并走访物理治疗门诊开展观察性研究。
该研究有76名护理人员，其中51.32%为女性，48.68%为男性。护理人员的平均年龄为42岁，患者的平均年龄为55岁。护理的平均时长为六个月。护理人员的感知负担得分较低（平均为19.61），表明并非所有的协助都与压力相关。每项负担测量指标与改良Rankin残疾量表的相关性显著（r = 0.7，P < 0.0001）。进一步调查显示，当患者需要锻炼、行走或使用卫生间时，护理人员的压力水平明显更高。低年收入、较高的中等教育程度以及较少的家庭成员数量与压力得分最高的个体相关。
基于本研究，我们得出结论，居住在核心家庭中的低收入人群在康复期间需要更多的护理支持。我们建议制定健康和福利政策措施以减轻护理人员的负担，从而改善护理人员中风后的体验。
