Ryś Bogusława, Bąk Ewelina
Faculty of Health Sciences, University of Bielsko-Biala, ul.Willowa 2, 43-309 Bielsko-Biala, Poland.
J Clin Med. 2025 Apr 26;14(9):3008. doi: 10.3390/jcm14093008.
: Physical, emotional, psychological, and social factors influence the high level of burden of a caregiver providing care for a patient at home after a stroke. The purpose of this study was to identify and evaluate factors influencing the high level of burden on the caregiver providing care for a post-stroke patient, including factors on the part of the patient and caregiver. : This cross-sectional study was conducted at the Neurological Rehabilitation Department of the Hospital Beskid Treatment and Rehabilitation Complex in Jaworze, Poland, and the Neurological Rehabilitation Department of the Railway Hospital in Wilkowice-Bystra. The study participants comprised post-stroke patients and their family caregivers (during visits to hospital), 110 pairs. The measures for caregivers were such as the following: Beck Depression Inventory, the Polish adaptation of the Perceived Stress Scale, the Polish adaptation of the Mini-COPE questionnaire to measure stress coping strategies, and the WHO Quality of Life Brief Version. The measures for patients were such as the following: the modified Rankin Scale and Abbreviated Mental Test Score to assess functional capacity for simple Activities of Daily Living (ADL). All statistical calculations were performed using the R statistical package version 4.4.2. A high caregiver burden was found in 30 people (27.3%). Logistic regression analysis proved that low quality of life, stress, caregiver-triggered strategies (discharge and cessation of activities), caregiver frustration, psychological burden, financial situation, longer time spent on patient care, functional status (ADL) on the part of the patient, judgment of significant degree of disability judgment, and age of the patient are determinants affecting high caregiver burden levels. : Almost 1/3 of caregivers experienced a high burden when taking care of a person after stroke. Analyzing the Gini index, from the model's point of view, quality of life is the most important characteristics, and caregiver frustration is the least important, which influences the high level of caregiver burden.
身体、情感、心理和社会因素会影响中风后在家照顾患者的照料者的高负担水平。本研究的目的是识别和评估影响中风后患者照料者高负担水平的因素，包括患者和照料者自身的因素。
本横断面研究在波兰亚沃热的贝斯基德治疗与康复中心医院神经康复科以及维尔科维采-比斯特拉铁路医院神经康复科进行。研究参与者包括中风后患者及其家庭照料者（在医院就诊期间），共110对。照料者的测量指标如下：贝克抑郁量表、波兰版感知压力量表、波兰版用于测量压力应对策略的简易应对方式问卷，以及世界卫生组织生活质量简表。患者的测量指标如下：改良Rankin量表和简易精神状态检查表，以评估简单日常生活活动（ADL）的功能能力。所有统计计算均使用R统计软件包版本4.4.2进行。在30人（27.3%）中发现照料者负担较高。逻辑回归分析证明，生活质量低、压力、照料者引发的策略（出院和停止活动）、照料者挫折感、心理负担、经济状况、照顾患者花费的时间更长、患者的功能状态（ADL）、对残疾严重程度的判断以及患者年龄是影响照料者高负担水平的决定因素。
近三分之一的照料者在照顾中风患者时经历了高负担。从模型角度分析基尼指数，生活质量是最重要的特征，而照料者挫折感是最不重要的，这影响了照料者的高负担水平。
