Can J Occup Ther. 2023 Jun;90(2):197-207. doi: 10.1177/00084174231160972.
Parents of a child considered to have special needs are at greater risk of stress and exhaustion. Although many occupational therapy interventions can help these children, they often require significant time and energy from families. To document the perspectives of parents and occupational therapists regarding ways to offer services that help build families' capacities without overloading them. A qualitative descriptive design guided online community forums with 41 parents and occupational therapists in Quebec, Canada. Nine key principles to build the capacities of families without overburdening them were identified. These include being sensitive to possible negative impacts of services, avoiding overwhelming the family with information or recommendations, taking the needed time, highlighting the positive, and offering flexible conditions for services. Our findings help identify how capacity-building rehabilitation services can be offered to families to optimize positive outcomes and minimize harms.
被认为有特殊需求的孩子的父母面临更大的压力和疲惫风险。尽管许多职业治疗干预措施可以帮助这些孩子,但它们通常需要家庭投入大量的时间和精力。为了记录父母和职业治疗师对于提供服务的看法,这些服务可以在不使家庭负担过重的情况下帮助他们提高能力。一项定性描述设计指导了加拿大魁北克的在线社区论坛,有 41 名父母和职业治疗师参加。确定了九条在不使家庭负担过重的情况下增强其能力的关键原则。这些原则包括对服务可能产生的负面影响保持敏感,避免向家庭提供过多的信息或建议,留出必要的时间,突出积极的方面,并为服务提供灵活的条件。我们的研究结果有助于确定如何向家庭提供增强能力的康复服务,以优化积极结果并最小化伤害。