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评估一项家庭能力建设服务:我们是利大于弊吗?

Evaluating a Family Capacity-Building Service: Are We Doing More Good Than Harm?

作者信息

Grandisson Marie, Chrétien-Vincent Myriam, Pratte Gabrielle, Fauteux Cynthia, Marcotte Justine, Jasmin Emmanuelle, Milot Élise, Bergeron Julie

出版信息

Can J Occup Ther. 2025 Jun;92(2):113-125. doi: 10.1177/00084174251323729. Epub 2025 Mar 13.

DOI:10.1177/00084174251323729
PMID:40079808
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12117127/
Abstract

Parents of children with special needs are more likely to experience stress and have health-related problems. Pediatric occupational therapy interventions that build parents' capacity are often considered to be effective. It remains unclear how they can be offered without overburdening parents. The purpose of this article is to share the findings from the evaluation of a flexible capacity-building occupational therapy service with seven families. A convergent parallel mixed methods design was used to document parents' and occupational therapists' perspectives on the services, including outcomes, strengths, weaknesses, opportunities, and threats. Parents reported understanding their children better, having more positive attitudes toward the challenges experienced, feeling more confident that they could help them, and having more satisfactory family routines. The importance for therapists to develop nonjudgmental collaborative relationships, to be flexible and to use the time available to help families with what matters the most in their daily lives came out particularly loudly. This study provides a concrete example of how it is possible to build families' capacities without overburdening them. It also provides guidance to establishments wishing to take a step back to think about how they build families' capacities.

摘要

有特殊需求儿童的家长更有可能经历压力并出现与健康相关的问题。增强家长能力的儿科职业治疗干预措施通常被认为是有效的。目前尚不清楚如何在不给家长造成过重负担的情况下提供这些干预措施。本文的目的是分享对一项针对七个家庭的灵活的能力建设职业治疗服务进行评估的结果。采用了收敛平行混合方法设计,以记录家长和职业治疗师对该服务的看法,包括结果、优势、劣势、机会和威胁。家长报告称,他们对孩子有了更深入的了解,对所经历的挑战持更积极的态度,更有信心帮助孩子,并且家庭日常安排也更令人满意。治疗师建立无偏见的合作关系、保持灵活性以及利用可用时间帮助家庭解决日常生活中最重要的问题,这些方面的重要性尤为突出。这项研究提供了一个具体例子,说明如何在不给家庭造成过重负担的情况下增强其能力。它还为希望回过头来思考如何增强家庭能力的机构提供了指导。

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Family pediatrics: report of the Task Force on the Family.家庭儿科学:家庭问题特别工作组报告
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本文引用的文献

1
Family-centered service through the eyes of insiders: Healthcare providers who are parents speak about receiving and providing healthcare in child health.以局内人的视角看以家庭为中心的服务:身为父母的医疗保健提供者谈论在儿童健康方面的医患接受和提供情况。
Res Dev Disabil. 2024 Jun;149:104746. doi: 10.1016/j.ridd.2024.104746. Epub 2024 Apr 27.
2
The health of mothers caring for a child with a disability: a longitudinal study.照顾残疾儿童的母亲的健康:一项纵向研究。
BMC Womens Health. 2023 Nov 30;23(1):639. doi: 10.1186/s12905-023-02798-y.
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Access and barriers to supports for children and caregivers attending public child developmental assessment services: Findings from the Sydney child neurodevelopment research registry.儿童和照料者参加公共儿童发育评估服务的获取途径和障碍:来自悉尼儿童神经发育研究登记处的研究结果。
Autism Res. 2024 Mar;17(3):555-567. doi: 10.1002/aur.3064. Epub 2023 Nov 27.
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Parent Coaching in Early Intervention for Autism Spectrum Disorder: A Brief Report.自闭症谱系障碍早期干预中的家长指导:简要报告
J Early Interv. 2023 Jun;45(2):185-197. doi: 10.1177/10538151221095860. Epub 2022 May 5.
5
What do parents want from healthcare services? Reports of parents' experiences with pediatric service delivery for their children with disabilities.家长对医疗保健服务有何期望?关于家长对残疾儿童提供儿科服务的体验报告。
Disabil Rehabil. 2024 Jun;46(12):2670-2683. doi: 10.1080/09638288.2023.2229733. Epub 2023 Jul 7.
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Comparing three coaching approaches in pediatric rehabilitation: contexts, outcomes, and mechanisms.比较三种儿童康复中的教练方法:背景、结果和机制。
Disabil Rehabil. 2024 Jun;46(12):2708-2719. doi: 10.1080/09638288.2023.2229731. Epub 2023 Jun 29.
7
Building Families' Capacities: Community Forums with Parents and Occupational Therapists.构建家庭能力:父母与职业治疗师社区论坛。
Can J Occup Ther. 2023 Jun;90(2):197-207. doi: 10.1177/00084174231160972.
8
A Clinically Significant Difference on the COPM: A Review.COPM 的临床意义差异:综述。
Can J Occup Ther. 2023 Mar;90(1):92-102. doi: 10.1177/00084174221142177. Epub 2023 Jan 17.
9
Parenting interventions to promote early child development in the first three years of life: A global systematic review and meta-analysis.养育干预措施促进生命最初三年的儿童早期发展:全球系统评价和荟萃分析。
PLoS Med. 2021 May 10;18(5):e1003602. doi: 10.1371/journal.pmed.1003602. eCollection 2021 May.
10
Solution-Focused Coaching in Pediatric Rehabilitation: Perceived Therapist Impact.聚焦问题的康复治疗师辅导法在儿科康复中的应用:治疗师感知的影响。
Phys Occup Ther Pediatr. 2020;40(3):263-278. doi: 10.1080/01942638.2019.1675846. Epub 2019 Oct 28.