LGBT 群体中阿尔茨海默病患者的照护体验。
Experiences of caregiving with Alzheimer's disease in the LGBT community.
机构信息
Division of General Internal Medicine, University of Colorado School of Medicine, 12631 East 17th Avenue, Aurora, CO, 80045, USA.
Regenstrief Institute, Indiana University Center for Aging Research, Indianapolis, IN, 46202, USA.
出版信息
BMC Geriatr. 2023 May 15;23(1):293. doi: 10.1186/s12877-023-03914-1.
BACKGROUND
The goal of this paper is to develop a more thorough understanding of the experiences of LGBT older adults living with dementia and their caregivers.
METHODS
A phenomenological approach using in-depth interviews with current or former caregivers of LGBT persons living with Alzheimer's disease (AD) was conducted.
RESULTS
Participants ranged in age from 44-77 years old; 74% were lesbian, 16% gay, 5% straight, and 5% unknown. Five themes were identified from the analysis: Caregiver tension and isolation; financial stress & security; lack of social support & connection; engineering grief support, and entrapment of past and present stigma and discrimination.
CONCLUSIONS
Discrimination related to LGBT status was an important theme over the participants' lives and occurred for several during dementia care. While other themes were similar to prior AD studies, LGBT status affected these other aspects of the caregiving experience. Findings can inform future programs that better meet needs of LGBT people and those who care for them.
背景
本文旨在更深入地了解患有痴呆症的 LGBT 老年患者及其护理人员的经历。
方法
采用现象学方法，对患有阿尔茨海默病（AD）的 LGBT 人士的现任或前任护理人员进行深入访谈。
结果
参与者的年龄从 44 岁到 77 岁不等；74%为女同性恋者，16%为男同性恋者，5%为异性恋者，5%为未知性取向。分析中确定了五个主题：护理人员的紧张和孤立；经济压力和保障；缺乏社会支持和联系；悲伤支持工程，以及过去和现在的耻辱感和歧视的束缚。
结论
与 LGBT 身份相关的歧视是参与者生活中的一个重要主题，并且在痴呆症护理期间发生在数人身上。虽然其他主题与之前的 AD 研究相似，但 LGBT 身份影响了护理体验的其他方面。研究结果可以为未来的项目提供信息，更好地满足 LGBT 人群及其护理人员的需求。
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