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轻度认知障碍、阿尔茨海默病及相关痴呆症患者的 LGBTQ+ 照顾者中的 LGBTQ+ 身份认同、社会支持与护理获取情况

LGBTQ+ identity social support and care access among LGBTQ+ caregivers of individuals living with mild cognitive impairment, Alzheimer's disease, and related dementias.

作者信息

Lampe Nik M, Akré Ellesse-Roselee L, Barbee Harry, McKay Tara

机构信息

Department of Mental Health Law & Policy, College of Behavioral and Community Sciences, University of South Florida, Tampa, Florida, USA.

Department of Health Policy and Management, Johns Hopkins University Bloomberg School of Public Health, Baltimore, Maryland, USA.

出版信息

Alzheimers Dement. 2025 May;21(5):e70188. doi: 10.1002/alz.70188.

DOI:10.1002/alz.70188
PMID:40371759
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12079399/
Abstract

INTRODUCTION

This study examines the associations of caregiver role with lesbian, gay, bisexual, transgender, and queer (LGBTQ+) identity social support, relationships, and care outcomes among LGBTQ+ older adults.

METHODS

We use LGBTQ+ Social Networks, Aging, and Policy Study Wave 3 data (QSNAPS; N = 982). Descriptive and logistic regression analyses were conducted to examine associations between caregiver role and outcomes.

RESULTS

Eighty respondents (8.1%) care for 90 individuals with neurocognitive disorders, a majority of whom are parents of the respondent. LGBTQ+ older adult caregivers were half as likely to have family support (p < 0.05); 40.6% less likely to have coworker support (p < 0.1); and 45.6% less likely to have neighbor support (p < 0.05) for LGBTQ+ identities. Caregivers were more likely to receive practical help from others (p < 0.01), but experienced issues related to their own access to health care.

DISCUSSION

Understanding LGBTQ-identity social support and care access can inform targeted interventions to reduce LGBTQ+ caregiver health disparities.

HIGHLIGHTS

Transgender and gender diverse adults were more likely to be mild cognitive impairment/Alzheimer's disease and related dementias (MCI/ADRD) caregivers. LGBTQ+ MCI/ADRD caregivers primarily provide care to parents and familial relatives. MCI/ADRD care recipients hold differing political views than LGBTQ+ caregivers. LGBTQ+ caregivers were less likely to have family, coworker, and neighbor support. LGBTQ+ caregivers were less likely to receive LGBTQ-affirming care communication.

摘要

引言

本研究探讨了照顾者角色与女同性恋、男同性恋、双性恋、跨性别及酷儿(LGBTQ+)老年人的身份认同、社会支持、人际关系及护理结果之间的关联。

方法

我们使用了LGBTQ+社会网络、老龄化与政策研究的第三次浪潮数据(QSNAPS;N = 982)。进行了描述性和逻辑回归分析,以检验照顾者角色与结果之间的关联。

结果

80名受访者(8.1%)照顾90名患有神经认知障碍的个体,其中大多数是受访者的父母。LGBTQ+老年照顾者获得家庭支持的可能性只有一半(p < 0.05);获得同事支持的可能性低40.6%(p < 0.1);获得邻居对LGBTQ+身份支持的可能性低45.6%(p < 0.05)。照顾者更有可能从他人那里获得实际帮助(p < 0.01),但在自身获得医疗保健方面遇到问题。

讨论

了解LGBTQ身份的社会支持和医疗保健获取情况可为有针对性的干预措施提供信息,以减少LGBTQ+照顾者的健康差距。

要点

跨性别和性别多样化的成年人更有可能成为轻度认知障碍/阿尔茨海默病及相关痴呆症(MCI/ADRD)的照顾者。LGBTQ+ MCI/ADRD照顾者主要为父母和家族亲属提供护理。MCI/ADRD护理接受者与LGBTQ+照顾者持有不同的政治观点。LGBTQ+照顾者获得家庭、同事和邻居支持的可能性较小。LGBTQ+照顾者获得LGBTQ肯定性护理沟通的可能性较小。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/61af/12079399/712ac452e977/ALZ-21-e70188-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/61af/12079399/25b870eda5c1/ALZ-21-e70188-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/61af/12079399/712ac452e977/ALZ-21-e70188-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/61af/12079399/25b870eda5c1/ALZ-21-e70188-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/61af/12079399/712ac452e977/ALZ-21-e70188-g002.jpg

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本文引用的文献

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J Gerontol B Psychol Sci Soc Sci. 2025 Apr 7;80(5). doi: 10.1093/geronb/gbaf009.
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Loneliness and Social and Emotional Support Among Sexual and Gender Minority Caregivers.性少数和性别少数群体照顾者中的孤独感以及社会和情感支持
JAMA Netw Open. 2024 Dec 2;7(12):e2451931. doi: 10.1001/jamanetworkopen.2024.51931.
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Safer dementia care spaces: Perspectives from LGBTQ+ people with cognitive impairment and caregivers.
更安全的痴呆症护理空间:认知障碍的 LGBTQ+ 群体及其照顾者的观点
Dementia (London). 2025 Feb;24(2):214-234. doi: 10.1177/14713012241284691. Epub 2024 Sep 18.
4
Promoting diverse perspectives: Addressing health disparities related to Alzheimer's and all dementias.促进多元化视角:解决与阿尔茨海默病和所有痴呆症相关的健康差异。
Alzheimers Dement. 2024 Apr;20(4):3099-3107. doi: 10.1002/alz.13752. Epub 2024 Mar 9.
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"Queer people are excellent caregivers, but we're stretched so very thin": Psychosocial wellbeing and impacts of caregiving among LGBTQI cancer carers.“酷儿人群是出色的照护者,但我们已经被极度地消耗了”:LGBTQI 癌症照护者的心理健康和照护影响。
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