School of Medicine, University of Nottingham, Nottingham, UK.
School of Health Sciences, University of Manchester, Manchester, UK.
Aging Ment Health. 2022 Oct;26(10):1912-1921. doi: 10.1080/13607863.2021.2008870. Epub 2021 Nov 28.
OBJECTIVES: More than 60% of people with dementia live at home, where assistance is usually provided by informal caregivers. Research on the experiences of the Lesbian, Gay, Bisexual and Transgender (LGBT) caregivers is limited. This scoping review of the literature synthesizes international evidence on support provision for the population of LGBT caregivers. METHODS: Eight electronic databases and Google Scholar were searched using terms including 'Dementia', 'LGBT' and 'Caregiver' for all types of articles, including empirical studies, grey literature and sources from charity/third sector/lobbying organisations. Article selection was performed by two raters. Data were analysed through deductive thematic analysis, and three themes were established a priori: Distinct experiences of LGBT caregivers; current barriers to support; strategies to overcome the current challenges. RESULTS: Twenty articles were included. Distinct experiences of LGBT caregivers included a loss of LGBT identity, the impact of historical events, families of choice, and disclosing LGBT identities. Current barriers to support included poor representation of LGBT caregivers in support services, negative attitudes of staff and reluctance of caregivers to seek support. Strategies to overcome the current challenges included staff awareness training and kite-marking inclusion. CONCLUSION: Limited cultural competency of staff and a subsequent reluctance to seek help have an impact on use of support services among LGBT caregivers. Implications for practice include the development of cost-effective, feasible, and acceptable inclusiveness training for services. Implications for policy include implementation in organisations of top-down agendas supporting staff to understand sexuality and non-heteronormative relationships in older age.
目的:超过 60%的痴呆症患者居住在家庭中,通常由非正式照顾者提供帮助。针对女同性恋、男同性恋、双性恋和跨性别(LGBT)照顾者的研究有限。本文献综述综合了国际上关于为 LGBT 照顾者群体提供支持的证据。
方法:使用包括“痴呆症”、“LGBT”和“照顾者”在内的术语,对八个电子数据库和 Google Scholar 进行了搜索,包括各种类型的文章,包括实证研究、灰色文献和慈善/第三部门/游说组织的来源。由两名评审员进行文章选择。通过演绎主题分析对数据进行分析,并预先确定了三个主题:LGBT 照顾者的独特体验;当前支持的障碍;克服当前挑战的策略。
结果:共纳入 20 篇文章。LGBT 照顾者的独特体验包括 LGBT 身份的丧失、历史事件的影响、选择的家庭和 LGBT 身份的披露。当前支持的障碍包括支持服务中 LGBT 照顾者代表性不足、工作人员的负面态度以及照顾者不愿寻求支持。克服当前挑战的策略包括工作人员意识培训和风筝标记纳入。
结论:工作人员文化能力有限,以及随后不愿寻求帮助,对 LGBT 照顾者使用支持服务产生了影响。对实践的影响包括为服务制定具有成本效益、可行且可接受的包容性培训。对政策的影响包括在组织中实施自上而下的议程,支持工作人员理解老年人群体中的性行为和非异性恋关系。
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