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当家庭生活对姑息治疗中的癌症照顾者负担产生影响时。

When Family Life Contributes to Cancer Caregiver Burden in Palliative Care.

机构信息

Washington University in St. Louis, MO, USA.

University of Missouri, Columbia, USA.

出版信息

J Fam Nurs. 2023 Aug;29(3):275-287. doi: 10.1177/10748407231167545. Epub 2023 May 16.

DOI:10.1177/10748407231167545
PMID:37190779
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10330805/
Abstract

The difficulties of caring for a family member with advanced cancer are well documented. Support from a caregiver's social network-especially other family-is vital to reducing caregiver burden and psychological distress. However, the family environment is not always supportive as reports of family conflict and dissatisfaction with support are common. Despite knowing that family relationships are complex, little is known about the types of family stress that caregivers of advanced cancer patients face in their daily lives. To address this gap, researchers applied concepts from the double ABCX model to conduct a reflexive thematic analysis of interviews with 63 caregivers of cancer patients receiving outpatient palliative care. Four themes of family stress were identified: , and . Findings inform clinical assessment and caregiver intervention development by revealing the importance of measuring the mundane machinations of family life for caregivers of adult cancer patients.

摘要

照顾晚期癌症患者的家庭成员面临的困难有大量文献记载。来自照顾者社会网络(尤其是其他家庭成员)的支持对于减轻照顾者负担和心理困扰至关重要。然而,家庭环境并不总是支持性的,因为家庭冲突和对支持的不满的报告很常见。尽管知道家庭关系是复杂的,但对于晚期癌症患者照顾者在日常生活中面临的家庭压力类型知之甚少。为了解决这一差距,研究人员应用双重 ABCX 模型的概念,对 63 名接受门诊姑息治疗的癌症患者的照顾者进行了反思性主题分析。确定了四个家庭压力主题:经济压力、日常压力、疾病负担和沟通问题。研究结果通过揭示衡量成年癌症患者照顾者家庭生活平凡运转的重要性,为临床评估和照顾者干预措施的发展提供了信息。

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本文引用的文献

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Risk of Psychiatric Disorders Among Spouses of Patients With Cancer in Denmark and Sweden.丹麦和瑞典癌症患者配偶患精神障碍的风险。
JAMA Netw Open. 2023 Jan 3;6(1):e2249560. doi: 10.1001/jamanetworkopen.2022.49560.
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Family Caregivers' Experiences of Caring for Advanced Cancer Patients: A Qualitative Systematic Review and Meta-synthesis.家庭照顾者照顾晚期癌症患者的经历:一项定性系统综述与元整合分析
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PLoS One. 2021 Mar 1;16(3):e0247143. doi: 10.1371/journal.pone.0247143. eCollection 2021.
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BMC Geriatr. 2020 Aug 26;20(1):304. doi: 10.1186/s12877-020-01708-3.
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Psychosocial support interventions for cancer caregivers: reducing caregiver burden.癌症照顾者的心理社会支持干预:减轻照顾者负担。
Curr Opin Support Palliat Care. 2020 Sep;14(3):247-262. doi: 10.1097/SPC.0000000000000508.
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