新冠疫情对帕金森病患者及其亲属的长期影响。
Long-Lasting Impact of the COVID-19 Pandemic on Patients with Parkinson's Disease and Their Relatives.
作者信息
Wolff Andreas Wolfgang, Haller Bernhard, Demleitner Antonia Franziska, Pürner Dominik, Niederschweiberer Johanna, Cordts Isabell, Westenberg Erica, Lingor Paul
机构信息
Department of Neurology, Klinikum rechts der Isar Technical University of Munich Munich Germany.
Institute of AI and Informatics in Medicine, Klinikum rechts der Isar, Technical University of Munich Munich Germany.
出版信息
Mov Disord Clin Pract. 2023 Apr 12;10(5):819-823. doi: 10.1002/mdc3.13727. eCollection 2023 May.
BACKGROUND
The coronavirus disease 2019 (COVID-19) pandemic has heavily impacted medical care of patients with Parkinson's disease (PwP).
OBJECTIVE
To assess the longitudinal impact of the COVID-19 pandemic on PwP and their relatives in Germany.
METHODS
Two online, nationwide, cross-sectional surveys were conducted from December 2020 to March 2021 and from July to September 2021.
RESULTS
A total of 342 PwP and 113 relatives participated. Despite partial resumption of social and group activities, healthcare was continuously disrupted during times of loosened restrictions. Respondents' willingness to use telehealth infrastructure increased, yet the availability remained low. PwP reported worsened symptoms and further deterioration during the pandemic, resulting in an increase in new symptoms and relatives' burden. We identified patients at particular risk: young patients and those with long disease duration.
CONCLUSIONS
The COVID-19 pandemic persistently disrupts the care and quality of life of PwP. Although willingness to use telemedicine services has increased, its availability needs to be improved.
背景
2019年冠状病毒病（COVID-19）大流行对帕金森病患者（PwP）的医疗护理产生了重大影响。
目的
评估COVID-19大流行对德国PwP及其亲属的长期影响。
方法
于2020年12月至2021年3月以及2021年7月至9月进行了两项全国性在线横断面调查。
结果
共有342名PwP和113名亲属参与。尽管社会和团体活动部分恢复，但在限制放宽期间医疗保健仍持续受到干扰。受访者使用远程医疗基础设施的意愿有所增加，但可用性仍然较低。PwP报告在大流行期间症状恶化且进一步加重，导致新症状增加以及亲属负担加重。我们确定了特别高危的患者：年轻患者和病程长的患者。
结论
COVID-19大流行持续扰乱PwP的护理和生活质量。尽管使用远程医疗服务的意愿有所增加，但其可用性仍需改善。
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