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应对 COVID-19 大流行的帕金森病患者在线护理模式的转变和可持续性。

Transition and Sustainability of an Online Care Model for People With Parkinson's Disease in Response to the COVID-19 Pandemic.

机构信息

Department of Osteopathic Medicine, New York Institute of Technology College of Osteopathic Medicine, Old Westbury, NY, United States.

Department of Physical Therapy, New York Institute of Technology School of Health Professions, Old Westbury, NY, United States.

出版信息

Front Public Health. 2022 Feb 2;9:772805. doi: 10.3389/fpubh.2021.772805. eCollection 2021.

DOI:10.3389/fpubh.2021.772805
PMID:35186865
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8847449/
Abstract

INTRODUCTION

CoronaVirus Disease-2019 (COVID-19) led to social distancing and the need for alternative care models. Telehealth programs for people with Parkinson's (PWP) disease may ensure continuity of care. The goal of this observational survey study was to determine the practicability, satisfaction, and barriers to online programs, their relationship to perceived symptoms, mood, and quality of life, and program sustainability beyond the immediate pandemic.

METHODS

In-person Parkinson's programs at New York Institute of Technology College of Osteopathic Medicine transitioned online at the start of the pandemic to include Rock Steady Boxing, Support Groups, and Rock Steady Buddies. A custom online survey sent to 150 participants investigated PD history, symptomatology, level of exercise before and during the pandemic, depression (PHQ-9), quality of life (PDQ-39), and practicability and perceived satisfaction related to these online programs. Descriptive statistics were reported.

RESULTS

Of 69 respondents [mean age of 70.2y (SD 8.4 yrs)], >75% were satisfied with the transition to online programs. Consistent attendance and minimal barriers to programs indicated practicability, with increased adherence to exercise. Of 66 completed PHQ-9s, 22.7% had scores ≥9 (moderate to severe depression); of 61 completed PDQ-39s, scores averaged 21.4; better quality of life than national averages for PWP. Self-perceived physical and mental wellbeing were positively affected.

CONCLUSIONS

Results suggest the transition to online programs met the needs of the Parkinson's community in a practicable and sustainable manner during the pandemic. With COVID-19 still prevalent, the current model of blending synchronous online and in-person classes provides a more flexible, sustainable format compared to in-person alone. Institutions may consider including online components to existing programs to promote continuity of care for aging populations as part of best practices.

摘要

简介

2019 年冠状病毒病(COVID-19)导致了社会隔离和对替代护理模式的需求。针对帕金森病(PWP)患者的远程医疗计划可能确保护理的连续性。本观察性调查研究的目的是确定在线计划的实用性、满意度和障碍,以及它们与感知症状、情绪和生活质量的关系,以及在大流行结束后计划的可持续性。

方法

纽约理工学院骨科医学院的现场帕金森病计划在大流行开始时过渡到线上,包括摇滚稳定拳击、支持小组和摇滚稳定伙伴。向 150 名参与者发送了一份定制的在线调查,调查了 PD 病史、症状、大流行前和期间的运动水平、抑郁(PHQ-9)、生活质量(PDQ-39)以及这些在线计划的实用性和感知满意度。报告了描述性统计数据。

结果

在 69 名回复者中[平均年龄 70.2 岁(标准差 8.4 岁)],>75%的人对过渡到在线计划感到满意。持续参加和对计划的最小障碍表明了实用性,同时增加了对运动的坚持。在 66 份完成的 PHQ-9 中,22.7%的人得分≥9(中度至重度抑郁);在 61 份完成的 PDQ-39 中,平均得分 21.4;生活质量优于全国 PWP 的平均水平。自我感知的身心健康受到积极影响。

结论

结果表明,在大流行期间,向在线计划的过渡以一种实用和可持续的方式满足了帕金森病社区的需求。随着 COVID-19 的持续流行,目前的同步在线和面对面混合模式与仅面对面模式相比,提供了更灵活、更可持续的格式。各机构可能会考虑在现有计划中纳入在线内容,以促进老龄化人口的护理连续性,作为最佳实践的一部分。

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