Australian Centre for Health Services Innovation (AusHSI) and Centre for Healthcare Transformation, School of Public Health and Social Work, Queensland University of Technology (QUT), Brisbane, QLD, Australia.
Centre for the Business and Economics of Health, The University of Queensland, QLD, Brisbane, Australia.
Patient. 2023 Jul;16(4):371-383. doi: 10.1007/s40271-023-00631-0. Epub 2023 May 22.
BACKGROUND AND OBJECTIVE: It is critical to evaluate cancer survivors' preferences when developing follow-up care models to better address the needs of cancer survivors. This study was conducted to understand the key attributes of breast cancer follow-up care for use in a future discrete choice experiment (DCE) survey. METHODS: Key attributes of breast cancer follow-up care models were generated using a multi-stage, mixed-methods approach. Focus group discussions were conducted with cancer survivors and clinicians to generate a range of attributes of current and ideal follow-up care. These attributes were then prioritised using an online survey with survivors and healthcare providers. The DCE attributes and levels were finalised via an expert panel discussion based on the outcomes of the previous stages. RESULTS: Four focus groups were held, two with breast cancer survivors (n = 7) and two with clinicians (n = 8). Focus groups generated sixteen attributes deemed important for breast cancer follow-up care models. The prioritisation exercise was conducted with 20 participants (14 breast cancer survivors and 6 clinicians). Finally, the expert panel selected five attributes for a future DCE survey tool to elicit cancer survivors' preferences on breast cancer follow-up care. The final attributes included: the care team, allied health and supportive care, survivorship care planning, travel for appointments, and out-of-pocket costs. CONCLUSIONS: Attributes identified can be used in future DCE studies to elicit cancer survivors' preferences for breast cancer follow-up care. This strengthens the design and implementation of follow-up care programs that best suit the needs and expectations of breast cancer survivors.
背景与目的:在制定随访护理模式时,评估癌症幸存者的偏好对于更好地满足癌症幸存者的需求至关重要。本研究旨在了解乳腺癌随访护理的关键属性,以便在未来的离散选择实验(DCE)调查中使用。
方法:采用多阶段混合方法生成乳腺癌随访护理模型的关键属性。通过与癌症幸存者和临床医生进行焦点小组讨论,生成当前和理想随访护理的一系列属性。然后,通过幸存者和医疗保健提供者的在线调查对这些属性进行优先排序。基于前几个阶段的结果,通过专家小组讨论确定 DCE 属性和水平。
结果:共进行了 4 次焦点小组讨论,其中 2 次与乳腺癌幸存者(n=7)和 2 次与临床医生(n=8)进行。焦点小组生成了 16 个被认为对乳腺癌随访护理模型重要的属性。优先排序练习由 20 名参与者(14 名乳腺癌幸存者和 6 名临床医生)进行。最后,专家小组选择了 5 个属性用于未来的 DCE 调查工具,以了解癌症幸存者对乳腺癌随访护理的偏好。最终属性包括:护理团队、辅助健康和支持性护理、生存护理计划、预约旅行和自付费用。
结论:确定的属性可用于未来的 DCE 研究,以了解癌症幸存者对乳腺癌随访护理的偏好。这加强了随访护理计划的设计和实施,使其最适合乳腺癌幸存者的需求和期望。
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