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患者对一种视听干预措施的体验,即针对膀胱癌患者使用定制的解释视频。

Patients' experiences with an audio-visual intervention, the use of a tailored explanimation video in patients with bladder cancer.

作者信息

Wolters-Zwolle Marjon, de Jongh Marielle M E, van Elst Maarten W, Meijer Richard P, Vervoort Sigrid C J M

机构信息

University Medical Centre Utrecht, Clinical Health Sciences, Nursing Science, Utrecht University, Utrecht, the Netherlands.

Department of Urological Oncology, Division of Imaging & Oncology, University Medical Centre Utrecht, The Netherlands.

出版信息

PEC Innov. 2022 Apr 22;1:100042. doi: 10.1016/j.pecinn.2022.100042. eCollection 2022 Dec.

Abstract

OBJECTIVE

This qualitative study explored the experiences of patients with bladder cancer with a tailored 'explanimation' video (EV) as a supportive information tool used before and during treatment.

METHODS

Using a qualitative approach, data were collected through semi-structured interviews with 12 patients with bladder cancer and thematically analysed.

RESULTS

Participants advised future use of the EV, noting it is user friendly and has a fitting difficulty level and clarifying animations. However, some mentioned practical information on 'life after treatment' was lacking, and some emphasized the importance of choosing the right moment of delivery. Patients' experiences were described in four major themes: taking own responsibility, providing opportunity for postponed information supply, easing decision-making processes and gaining a sense of calm.

CONCLUSION

Findings indicate the EV supported patients with bladder cancer in the process of being informed and in decision-making. Future use of the EV in the treatment of patients with bladder cancer is recommended.

INNOVATION

The use of audiovisual information in patient education is innovative. Tailored audiovisual information in shape of the EV is a step forward in streamlining information processes, meeting individual preferences and highlighting the most important general information for patients with bladder cancer.

摘要

目的

本定性研究探讨了膀胱癌患者使用定制的“解释性”视频(EV)作为治疗前和治疗期间辅助信息工具的体验。

方法

采用定性研究方法,通过对12名膀胱癌患者进行半结构化访谈收集数据,并进行主题分析。

结果

参与者建议未来继续使用该视频,指出它用户友好,难度水平适中,动画解释清晰。然而,一些人提到缺乏关于“治疗后生活”的实用信息,一些人强调选择合适播放时机的重要性。患者的体验主要体现在四个主题中:承担个人责任、提供延迟信息供应的机会、简化决策过程和获得平静感。

结论

研究结果表明,该视频在为膀胱癌患者提供信息和决策过程中起到了辅助作用。建议未来在膀胱癌患者治疗中继续使用该视频。

创新点

在患者教育中使用视听信息具有创新性。以视频形式提供的定制视听信息在简化信息流程、满足个人偏好以及突出对膀胱癌患者最重要的一般信息方面向前迈进了一步。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/529b/10194105/4045e5894ab4/gr1.jpg

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