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开发医学信息图表以提高癌症患者的症状意识并促进与患者的沟通:一项共创研究。

The development of medical infographics to raise symptom awareness and promote communication to patients with cancer: A co-creation study.

作者信息

Piil Karin, Pedersen P, Gyldenvang H Holm, Elsborg A Juhl, Skaarup A Bascuñan, Starklint M, Kjølsen T, Pappot H

机构信息

Department of Oncology, Copenhagen University Hospital - Rigshospitalet, Centre for Cancer and Organ Diseases, Blegdamsvej 9, 2100 Copenhagen, Denmark.

Aarhus University, Department of Public Health, Bartholins Allé 2, 8000 Aarhus, Denmark.

出版信息

PEC Innov. 2023 Mar 20;2:100146. doi: 10.1016/j.pecinn.2023.100146. eCollection 2023 Dec.

Abstract

OBJECTIVE

The study aims to develop medical infographics that have a potential to raise symptom awareness and promote symptom communication between patients diagnosed with cancer and healthcare professionals.

METHODS

This study comprised four phases: 1) development of medical infographics, 2) user testing with healthcare professionals and patients, 3) selection of specific medical infographics, and 4) interviews on these specific medical infographics with patients using the think-aloud method.

RESULTS

Design students created 22 medical infographics conveying information about six symptoms and concerns. Patients ( = 28) with cancer said that the colourful infographics evoked individual emotional responses and associations, and they facilitated their narratives of experiences with symptoms. Healthcare professionals ( = 29) thought the infographics were eye-catching and may promote dialogue on symptoms.

CONCLUSIONS

The design of medical infographics must target a specific population. When introduced, the use of medical infographics may be influenced by the physical surroundings. Medical infographics can facilitate symptom communication by creating symptom awareness and providing patients with the vocabulary to describe their symptoms and concerns.

INNOVATION

Medical infographics are engaging visual messages with the potential to help prepare cancer patients to communicate their symptom experiences and reduce the feeling of being alone in experiencing certain symptoms.

摘要

目的

本研究旨在开发具有提高症状认知度并促进癌症确诊患者与医护人员之间症状交流潜力的医学信息图表。

方法

本研究包括四个阶段:1)医学信息图表的开发;2)与医护人员和患者进行用户测试;3)选择特定的医学信息图表;4)采用出声思维法对使用这些特定医学信息图表的患者进行访谈。

结果

设计专业学生创作了22幅医学信息图表,传达有关六种症状及相关问题的信息。28名癌症患者表示,色彩丰富的信息图表引发了个人的情绪反应和联想,有助于他们讲述症状体验。29名医护人员认为这些信息图表引人注目,可能会促进关于症状的对话。

结论

医学信息图表的设计必须针对特定人群。在引入时,医学信息图表的使用可能会受到物理环境的影响。医学信息图表可以通过提高症状认知度并为患者提供描述其症状及相关问题的词汇来促进症状交流。

创新点

医学信息图表是引人入胜的视觉信息,有可能帮助癌症患者做好交流症状体验的准备,并减少在经历某些症状时的孤独感。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/891d/10194395/066edc603f05/fx1.jpg

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