Ray D. Wolfe Department of Family Medicine, Mount Sinai Hospital, Sinai Health, Toronto, Ontario, Canada
Department of Family & Community Medicine, University of Toronto, Toronto, Ontario, Canada.
Ann Fam Med. 2023 May-Jun;21(3):269-273. doi: 10.1370/afm.2971.
The experience-based design approach using patient-guided tours (PGT) has been suggested as an effective way to understand the patient experience and may better allow the patient to recall thoughts and feelings. The objective of this study was to assess how patients with a disability perceive the effectiveness of PGTs for understanding their experiences of receiving primary health care.
A qualitative study design was used. Participants were chosen by convenience sampling. The patient was asked to walk through the clinic as they would on a "typical visit" while describing their experiences. They were questioned about their experience and perception of PGTs. The tour was audiotaped and transcribed. The investigators took field notes and completed thematic content analysis.
Eighteen patients participated. The main findings were: (1) Touchpoints and physical cues were effective in eliciting experiences that participants stated they would not have recalled using other research methods, (2) The ability for participants to show the investigator aspects of the space that impacted their experience enabled the investigator to "see through their eyes" resulting in ease of communication and a sense of empowerment, (3) PGTs encouraged individuals to be active participants which fostered comfort and collaboration, and (4) PGTs may exclude those that are severely disabled.
This method was perceived as effective at eliciting experiences of patients with a disability. It has benefits over more traditional research methods by allowing the participant to refresh their memory at "touchpoints" and enabling them to be active participants.
使用患者引导式参观（PGT）的基于经验的设计方法已被认为是一种了解患者体验的有效方法，并且可能使患者更好地回忆起自己的想法和感受。本研究的目的是评估残疾患者如何看待 PGT 对于理解他们接受初级保健的体验的有效性。
采用定性研究设计。通过便利抽样选择参与者。要求患者在描述其就诊经历时，按照“典型就诊”的方式在诊所内进行参观。询问他们对 PGT 的体验和看法。参观过程被录音并转录。研究者记录现场笔记并进行主题内容分析。
共有 18 名患者参与。主要发现如下：（1）接触点和物理线索可有效地引出患者表示，使用其他研究方法他们不会回忆起来的体验；（2）参与者能够向研究者展示影响其就诊体验的空间方面，使研究者能够“透过他们的眼睛”看问题，从而实现轻松的沟通和赋权感；（3）PGT 鼓励患者积极参与，促进了舒适度和合作；（4）PGT 可能会将那些严重残疾的人排除在外。
该方法被认为对残疾患者的体验具有有效性。与更传统的研究方法相比，它具有优势，允许参与者在“接触点”刷新记忆，并使他们成为积极的参与者。
