Research and Development, MapHabit, Inc., Atlanta, Georgia, United States of America.
Scientific Research, LuMind IDSC Foundation, Burlington, Massachusetts, United States of America.
PLoS One. 2023 May 24;18(5):e0284738. doi: 10.1371/journal.pone.0284738. eCollection 2023.
Enhancing independence and quality of life are key modifiable outcomes that are short- and long-term goals for children with Down syndrome and for their parents. Here we report the outcome of a 4-week feasibility study in a cohort of 26 children with Down Syndrome, 7-17 years old, who used an assistive technology approach that incorporated smart device software and step-by-step pictures (the MapHabit System). Parents reported improvements in children's activities of daily living, quality of life, and independence. They recommended this technology to other families. This report and its findings underscore the feasibility of using assistive technology in children with Down syndrome within home and family settings. A limiting factor is whether participants who did not complete the study, and thus were not included in analyses, might have impacted the study outcomes. The current findings that assistive technology can be used successfully and effectively in family and home settings set the stage for more informative systematic studies using assistive technology for this population. Trial registration: The clinical trial is registered with ClinicalTrials.gov Registration number: NCT05343468.
提高独立性和生活质量是唐氏综合征儿童及其家长的短期和长期目标,也是关键的可改变结果。在此,我们报告了一项针对 26 名 7-17 岁唐氏综合征儿童的为期 4 周的可行性研究结果,这些儿童使用了一种辅助技术方法,其中包括智能设备软件和逐步图片(MapHabit 系统)。家长报告说,孩子们的日常生活活动、生活质量和独立性都有所改善。他们向其他家庭推荐了这项技术。该报告及其研究结果强调了在家庭环境中使用辅助技术的可行性。一个限制因素是,没有完成研究的参与者,因此没有纳入分析,是否会对研究结果产生影响。目前的研究结果表明,辅助技术可以在家中和家庭环境中成功和有效地使用,为使用辅助技术对这一人群进行更具信息性的系统研究奠定了基础。试验注册:该临床试验在 ClinicalTrials.gov 注册,注册号为 NCT05343468。