Department of Psychiatry, Division of Behavioral Health Services and Policy Research, New York State Psychiatric Institute, Columbia University Vagelos College of Physicians and Surgeons.
Psychiatr Rehabil J. 2023 Sep;46(3):243-249. doi: 10.1037/prj0000570. Epub 2023 May 25.
People with mental illnesses may avoid or delay treatment due to a fear of labeling and discrimination, a phenomenon known as self-stigma. Self-stigma is a major barrier to care and creates obstacles to pursuing employment, independent living, and a fulfilling social life. We aimed to gather input from people with lived experience of mental illness to develop a social-contact-based, brief video-based intervention to reduce self-stigma.
Two ( = 12) focus groups were conducted to inform video content and led to the creation of a script and brief video using a professional actor, who described a story of living with schizophrenia while focusing on symptoms, personal struggles, and recovery. Two ( = 9) additional focus groups were held after video development to gather feedback and suggested edits. Focus group transcripts were analyzed using thematic content analysis.
Themes emerging in prevideo development included the negative effects of being diagnosed with severe mental illnesses, being stereotyped, the value of relatable recovery stories and seeing the person as a whole, and the utility of focusing on symptoms and experiences rather than diagnosis-specific language. Feedback in the postvideo focus groups was mainly favorable and resulted in edits related to language about "responsibility" and a disclaimer about using a professional actor.
While participants' experiences of stigma are consistent with extant literature, this is the first study to elicit the perspectives of people living with mental illnesses in developing a video intervention to reduce self-stigma. Studies are needed to examine the efficacy of these videos in reducing self/public stigma. (PsycInfo Database Record (c) 2023 APA, all rights reserved).
由于担心被贴上标签和歧视，患有精神疾病的人可能会回避或延迟治疗，这种现象被称为自我污名化。自我污名化是获得护理的主要障碍，它给寻求就业、独立生活和充实的社会生活带来了障碍。我们旨在收集有精神疾病经历的人的意见，以开发一种基于社交接触的简短视频干预措施，以减少自我污名化。
进行了两次（= 12）焦点小组讨论，为视频内容提供信息，并由此创作了一个脚本和简短视频，由一位专业演员出演，他讲述了一个患有精神分裂症的人的生活故事，重点讲述了症状、个人挣扎和康复。在视频开发后进行了另外两次（= 9）焦点小组讨论，以收集反馈意见和建议编辑。使用主题内容分析法对焦点小组的转录进行分析。
在视频开发前的主题包括被诊断出患有严重精神疾病的负面影响、被刻板印象化、有共鸣的康复故事和看到整个人的价值，以及关注症状和经历而不是特定于诊断的语言的实用性。在视频后的焦点小组中，反馈主要是积极的，并导致对语言的编辑，包括关于“责任”的语言和关于使用专业演员的免责声明。
虽然参与者的污名化经历与现有文献一致，但这是第一项在开发减少自我污名化的视频干预措施时征求有精神疾病经历的人的意见的研究。需要进行研究来检验这些视频在减少自我/公众污名化方面的效果。
