Gierek Marcin, Kitala Diana, Łabuś Wojciech, Glik Justyna, Szyluk Karol, Pietrauszka Kornelia, Bergler-Czop Beata, Niemiec Paweł
Dr Sakiel Center for Burns Treatment, Jana Pawła II Street 2, 41-100 Siemianowice Śląskie, Poland.
Department of Organisation of Chronic Wound Healing, Faculty of Health Sciences in Katowice, Medical University of Silesia in Katowice, 40-055 Katowice, Poland.
Healthcare (Basel). 2023 May 17;11(10):1453. doi: 10.3390/healthcare11101453.
(1) Background: Hidradenitis suppurativa is a chronic, inflammatory skin disease. It is characterized by the transformation of normal skin into skin with abscesses, nodules, tunnels, and scars. The most commonly affected areas are the armpits, groins, buttocks, and subscapular area. Patients with HS require constant care under the supervision of the outpatient clinic. Due to the COVID-19 pandemic, consultations have been introduced in the form of telemedicine. The aim of this study was to evaluate the availability of HS treatment during the COVID-19 pandemic and to assess patient satisfaction, problems with access to medical care, and the impact of the pandemic on the course of the disease. (2) Methods: An internet survey with an anonymous questionnaire was used to assess the effectiveness of telemedicine consultations. The survey consisted of 25 closed questions, and responses were kept fully anonymous. (3) Results: Most respondents reported minor problems with accessing specialized HS medical care during the COVID-19 pandemic (n = 25, 35.71%). However, 35.71% (n = 25) of them reported major problems with appointments for specialized ambulatory treatment during the last few months of the pandemic, mainly due to delayed appointments. Almost half of the respondents had been diagnosed with COVID-19 (n = 34, 48.57%), and 58.57% (n = 41) of respondents did not see a correlation between COVID-19 infection and HS progression. (4) Conclusions: Our study showed that the pandemic significantly limited access to medical advice, and patients with hidradenitis suppurativa prefer standard consultations.
（1）背景：化脓性汗腺炎是一种慢性炎症性皮肤病。其特征是正常皮肤转变为出现脓肿、结节、窦道和瘢痕的皮肤。最常受累的部位是腋窝、腹股沟、臀部和肩胛下区域。化脓性汗腺炎患者需要在门诊的监督下持续接受护理。由于新冠疫情，已采用远程医疗的形式进行会诊。本研究的目的是评估新冠疫情期间化脓性汗腺炎治疗的可及性，并评估患者满意度、获得医疗服务的问题以及疫情对疾病进程的影响。（2）方法：使用一份带有匿名问卷的网络调查来评估远程医疗会诊的有效性。该调查由25个封闭式问题组成，回答完全匿名。（3）结果：大多数受访者报告在新冠疫情期间获得专门的化脓性汗腺炎医疗服务存在一些小问题（n = 25，35.71%）。然而，其中35.71%（n = 25）的受访者报告在疫情的最后几个月中，专门的门诊治疗预约存在重大问题，主要原因是预约延迟。几乎一半的受访者曾被诊断感染新冠（n = 34，48.57%），58.57%（n = 41）的受访者认为新冠感染与化脓性汗腺炎病情进展之间没有关联。（4）结论：我们的研究表明，疫情显著限制了获得医疗建议的机会，化脓性汗腺炎患者更喜欢标准会诊。
