印度南部乳腺癌患者非正规照护者的认知和体验：一项定性研究。
Perceptions and Experiences of Informal Caregivers of Breast Cancer Patients in South India: A Qualitative Study.
机构信息
Department of Community Medicine, Kasturba Medical College (KMC), Manipal Academy of Higher Education (MAHE), Manipal, India.
Department of Demography, Faculty of Spatial Sciences, University of Groningen, Netherlands.
出版信息
Asian Pac J Cancer Prev. 2023 May 1;24(5):1651-1658. doi: 10.31557/APJCP.2023.24.5.1651.
BACKGROUND
This study was conducted to explore the prevailing perceptions and experiences of caregiving burden among informal caregivers of women living with breast cancer in South India.
METHODS
In-depth interviews were conducted among breast cancer care-receivers (n=35) and their informal caregivers (n=39) and a thematic analysis was used to analyze the data. Informal caregiver in the context of this study was defined as one who takes up the responsibility of an informal caregiving role, and were either self-identified or acknowledged by the care-receivers.
RESULTS
Four main inductive themes in the domains of: emotional culpability, financial and workplace liability, psychosocial affliction, physical strain and health system demand were identified, that were associated with caregiver burden.
CONCLUSION
Informal caregivers form an integral part of the cancer care continuum in India. It is recommended to factor in the identified themes while developing a caregiver needs assessment model in the context of caring for breast cancer patients in the Indian setting.
背景
本研究旨在探讨印度南部乳腺癌女性患者的非正式照护者的照护负担的普遍认知和体验。
方法
对 35 名乳腺癌患者和 39 名非正式照护者进行深入访谈，并采用主题分析法分析数据。在本研究中，非正式照护者被定义为承担非正式照护角色的人，他们是自我认同的，或者是被照护者所认可的。
结果
在与照护者负担相关的四个主要归纳主题领域中：情绪上的内疚感、经济和工作场所责任、心理社会痛苦、身体紧张和卫生系统需求，都被识别了出来。
结论
非正式照护者是印度癌症照护连续体的一个组成部分。建议在为印度的乳腺癌患者制定照护者需求评估模型时，考虑到所确定的主题。
Zotero 插件