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COPD 患者非专业照护者的照护负担与身体活动之间的痛苦关系。

Relationship between Distress Related to Caregiver Burden and Physical Activity in Informal Caregivers of Patients with COPD.

机构信息

Center for Innovative Care and Health Technology (ciTechCare), Polytechnic Institute of Leiria, Leiria, Portugal.

Naturidade Porto de Mós - Unidade de Cuidados Continuados Integrados, Porto de Mós, Portugal.

出版信息

COPD. 2020 Oct;17(5):562-567. doi: 10.1080/15412555.2020.1799964. Epub 2020 Aug 5.

DOI:10.1080/15412555.2020.1799964
PMID:32757671
Abstract

Chronic obstructive pulmonary disease (COPD) can lead to increased dependence on the informal caregiver and, consequently, to distress associated with caregiving burden. In the general population, higher levels of physical activity (PA) are related to lower distress levels; however, this relationship has been scarcely studied in COPD. This study aimed to explore the relationship between distress and PA in informal caregivers of patients with COPD, and the influence of caregivers' (age, sex) and patients' (age, sex, lung function) characteristics and caregiving duration on this relationship.A cross-sectional study was conducted with 50 caregivers (62.7 ± 9.8 years, 88% female; 78% caring for a spouse/partner; 38% caring >40 h/week; patients' FEV=45.2 ± 21.3% predicted). Data collection comprised questions related to the caregiving context, distress related to caregiving burden assessed with the Informal Caregiver Burden Assessment Questionnaire (QASCI; total score, 7 subscales), and self-reported PA with the Habitual Physical Activity Questionnaire (HPAQ). Spearman's correlation coefficient and linear regressions were used.Significant, negative and moderate correlations were found between the QASCI (28.5 ± 19.8) and the HPAQ (5.2 ± 1.3) (ρ=-0.46;  = 0.01); and between the HPAQ and some QASCI subscales (emotional burden ρ=-0.47; implications for personal life ρ=-0.52; financial burden ρ=-0.44; perception of efficacy and control mechanisms ρ=-0.42;  < 0.01). Two linear regression models were tested to predict QASCI total score including as predictors: 1) HPAQ alone ( = 0.001; r=0.23); 2) HPAQ and caregiving h/week ( < 0.001; r=0.34).Higher self-reported PA levels are related to decreased levels of distress associated with caregiver burden in COPD caregivers. Duration of caregiving may negatively influence this relationship.

摘要

慢性阻塞性肺疾病(COPD)可导致对非专业护理人员的依赖增加,进而导致与护理负担相关的困扰。在一般人群中,较高水平的身体活动(PA)与较低的困扰水平相关;然而,在 COPD 中,这种关系很少被研究。本研究旨在探讨 COPD 患者非专业护理人员的困扰与 PA 之间的关系,以及护理人员(年龄、性别)和患者(年龄、性别、肺功能)特征以及护理时间对这种关系的影响。

进行了一项横断面研究,共纳入 50 名护理人员(62.7±9.8 岁,88%为女性;78%护理配偶/伴侣;38%护理时间>40 小时/周;患者的 FEV=45.2±21.3%预计值)。数据收集包括与护理背景相关的问题、使用非专业护理人员负担评估问卷(QASCI;总评分,7 个亚量表)评估的与护理负担相关的困扰、以及使用习惯性身体活动问卷(HPAQ)报告的自我报告的 PA。使用 Spearman 相关系数和线性回归进行分析。

QASCI(28.5±19.8)和 HPAQ(5.2±1.3)之间存在显著的、负相关和中度相关(ρ=-0.46; = 0.01);并且 HPAQ 与 QASCI 的一些亚量表之间存在显著的、负相关和中度相关(情感负担 ρ=-0.47;对个人生活的影响 ρ=-0.52;经济负担 ρ=-0.44;对效能和控制机制的感知 ρ=-0.42; < 0.01)。测试了两个线性回归模型来预测 QASCI 总分,包括以下预测因子:1)单独 HPAQ( = 0.001;r=0.23);2)HPAQ 和每周护理时间( < 0.001;r=0.34)。

自我报告的 PA 水平较高与 COPD 护理人员的与护理负担相关的困扰水平降低有关。护理时间可能会对这种关系产生负面影响。

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引用本文的文献

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Int J Chron Obstruct Pulmon Dis. 2021 Aug 4;16:2245-2255. doi: 10.2147/COPD.S311772. eCollection 2021.