Gouider Riadh, Lorenz Deborah Henscheid, Craven Audrey, Grisold Wolfgang, Dodick David W
Neurology Department, LR18SP03, Razi Universitary Hospital, 1 rue des orangers Manouba, 2010 Tunis, Tunisia.
Faculty of Medicine of Tunis, University of Tunis El Manar, 15, Rue Djebel Akhdhar, La Rabta, 1007, Tunis, Tunisia.
eNeurologicalSci. 2023 May 10;31:100466. doi: 10.1016/j.ensci.2023.100466. eCollection 2023 Jun.
Primary headache disorders are worldwide highly prevalent and burdensome and should be therefore considered as a global public health priority. However, too many patients with primary headache disorders still do not receive satisfying care. The most likely identified reasons for such a scenario - lack of public awareness, stigma, lack of trained professionals with inadequate healthcare systems and policies - are remediable. Despite the progresses that were made in headache advocacy, these efforts have not yielded substantial improvements in research funding or access to specialty care and even standards of care. The situation is more complex in Low and Middle Income Countries (LMICs) where headache advocacy is urgently needed given the magnitude of the difficulties that patients with primary headache disorders face in accessing care. The growing emergence of coordinated, collaborative, patient-centered advocacy efforts with improved patient-clinician partnership is an opportunity to enhance progress in advocacy for a satisfying life and optimal and equitable care for people with primary headache disorders. LMICs can benefit greatly from coordinating these efforts on a global scale. The recent organization of a training program on headache diagnosis and management for healthcare professionals in Africa is a concrete example.
原发性头痛疾病在全球范围内高度流行且负担沉重，因此应被视为全球公共卫生重点。然而，仍有太多原发性头痛疾病患者未得到令人满意的治疗。出现这种情况最可能的原因——公众意识缺乏、污名化、缺乏训练有素的专业人员以及医疗保健系统和政策不完善——都是可以补救的。尽管在头痛宣传方面取得了进展，但这些努力在研究资金、获得专科护理甚至护理标准方面并未带来实质性改善。在低收入和中等收入国家（LMICs），情况更为复杂，鉴于原发性头痛疾病患者在获得护理方面面临的巨大困难，迫切需要进行头痛宣传。随着以患者为中心的协调、合作宣传工作的不断涌现，以及患者与临床医生伙伴关系的改善，这是一个提升宣传进展的机会，以便为原发性头痛疾病患者带来满意的生活以及最佳和公平的护理。低收入和中等收入国家可以通过在全球范围内协调这些努力而受益匪浅。最近为非洲的医疗保健专业人员组织的头痛诊断和管理培训项目就是一个具体例子。
