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青少年实体器官移植受者、父母和医疗保健专业人员在医疗过渡中的体验:定性系统评价。

The experiences of adolescent solid organ transplantation recipients, parents, and healthcare professionals in healthcare transition: A qualitative systematic review.

机构信息

Nursing Department, The First Affiliated Hospital, Zhejiang University School of Medicine, Hangzhou, Zhejiang, China.

Hepatobiliary and Pancreatic Surgery, The First Affiliated Hospital, Zhejiang University School of Medicine, Hangzhou, Zhejiang, China.

出版信息

J Pediatr Nurs. 2023 Jul-Aug;71:e154-e164. doi: 10.1016/j.pedn.2023.05.015. Epub 2023 Jun 1.

Abstract

PROBLEM

The transition from paediatric-centred to adult healthcare services in adolescent solid organ transplantation recipients is a period of increased risk and vulnerability, the issues related to healthcare transition have become key concerns to the healthcare community.

ELIGIBILITY CRITERIA

Qualitative studies of any design and qualitative components of mixed method studies that explored the experiences of healthcare transition among adolescent solid organ transplant recipients, parents, and healthcare professionals were included.

SAMPLE

Nine articles were finalised and included in the review.

METHODS

A systematic review of qualitative studies was conducted. Databases searched were Scopus, PsycINFO, EMBASE, Web of Science, PubMed, CINAHL and ProQuest Dissertations and Theses. Studies published between the inception of respective database and December 2022 inclusive were considered. A three-step inductive thematic synthesis method outlined by Thomas and Harden was used to form descriptive themes and the 10-item Joanna Briggs Institute Critical Appraisal Checklist was utilised to appraise the quality of included articles.

RESULTS

Two hundred and twenty studies were screened, and 9 studies published between 2013 and 2022 were included. Five analytical themes were generated: 'the struggle of being an adolescent with a transplant'; 'perceptions of transition'; 'the role of parents'; 'lack of transition readiness' and 'the need for better support'.

CONCLUSIONS

Adolescent solid organ transplant recipients, parents, and healthcare professionals faced multiple challenges in the healthcare transition.

IMPLICATIONS

Future interventions and health policies should provide targeted intervention strategies that address the barriers present in the healthcare transition to facilitate the optimization of the youth healthcare transition.

摘要

问题

青少年实体器官移植受者从以儿科为中心的医疗服务向成人医疗服务的过渡是一个风险和脆弱性增加的时期,与医疗过渡相关的问题已成为医疗保健界关注的焦点。

入选标准

纳入了任何设计的定性研究和混合方法研究的定性部分,这些研究探讨了青少年实体器官移植受者、父母和医疗保健专业人员的医疗过渡体验。

样本

最终有 9 篇文章纳入了综述。

方法

对定性研究进行了系统综述。检索的数据库包括 Scopus、PsycINFO、EMBASE、Web of Science、PubMed、CINAHL 和 ProQuest Dissertations and Theses。考虑了自各个数据库成立到 2022 年 12 月期间发表的研究。采用 Thomas 和 Harden 概述的三步归纳主题合成方法形成描述性主题,并使用 Joanna Briggs 研究所 10 项批判性评估清单评估纳入文章的质量。

结果

筛选了 220 篇研究,纳入了 2013 年至 2022 年期间发表的 9 篇研究。生成了 5 个分析主题:“作为移植青少年的挣扎”;“对过渡的看法”;“父母的角色”;“过渡准备不足”和“需要更好的支持”。

结论

青少年实体器官移植受者、父母和医疗保健专业人员在医疗过渡中面临多重挑战。

意义

未来的干预措施和卫生政策应提供有针对性的干预策略,以解决医疗过渡中存在的障碍,促进青年医疗过渡的优化。

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