Enhancing Cystinosis Health Care Transition Outcomes: Insights from the RISE Protocol.
作者信息
Hu Jieji, Huff Emily, Díaz-González de Ferris Maria, Raina Rupesh
机构信息
College of Medicine, Northeast Ohio Medical University, Rootstown, Ohio, USA.
Department of Pediatrics, The University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
出版信息
Kidney Int Rep. 2025 Apr 27;10(7):2488. doi: 10.1016/j.ekir.2025.04.046. eCollection 2025 Jul.
Abstract
摘要
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本文引用的文献
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Transitioning Care in Nephropathic Cystinosis: Overcoming Challenges in Young Adults.肾病型胱氨酸病的护理过渡：应对年轻人面临的挑战
Kidney Int Rep. 2025 Mar 4;10(3 Suppl):S784-S788. doi: 10.1016/j.ekir.2024.10.036. eCollection 2025 Mar.
2
The experiences of adolescent solid organ transplantation recipients, parents, and healthcare professionals in healthcare transition: A qualitative systematic review.青少年实体器官移植受者、父母和医疗保健专业人员在医疗过渡中的体验：定性系统评价。
J Pediatr Nurs. 2023 Jul-Aug;71:e154-e164. doi: 10.1016/j.pedn.2023.05.015. Epub 2023 Jun 1.
3
Structured Transition Protocol for Children with Cystinosis.胱氨酸病患儿的结构化过渡方案
Front Pediatr. 2017 Aug 31;5:191. doi: 10.3389/fped.2017.00191. eCollection 2017.
4
A coordinated transition model for patients with cystinosis: from pediatrics to adult care.胱氨酸病患者的协调过渡模型：从儿科到成人护理。
Nefrologia. 2016 Nov-Dec;36(6):616-630. doi: 10.1016/j.nefro.2016.05.012. Epub 2016 Aug 30.
5
Transition from pediatric to adult renal services: a consensus statement by the International Society of Nephrology (ISN) and the International Pediatric Nephrology Association (IPNA).儿科向成人肾脏科过渡：国际肾脏病学会（ISN）和国际儿科肾脏病学会（IPNA）的共识声明。
Kidney Int. 2011 Oct;80(7):704-7. doi: 10.1038/ki.2011.209. Epub 2011 Aug 10.
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