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了解食管癌根治术后出院患者的支持性护理需求:一项定性研究。

Understanding the supportive care needs among discharged patients with esophageal cancer after esophagectomy: A qualitative study.

机构信息

School of Nursing, Sun Yat-sen University, Zhongshan 2 Rd 74#, Guangzhou, Guangdong, PR China.

Department of Thoracic Oncology, Cancer Center, Sun Yat-Sen University, Dongfeng 1 Rd 651#, Guangzhou, Guangdong, PR China.

出版信息

Eur J Oncol Nurs. 2023 Jun;64:102337. doi: 10.1016/j.ejon.2023.102337. Epub 2023 May 1.

Abstract

PURPOSE

Patients with esophageal cancer experience physical and psychosocial difficulties after surgery. Understanding their unmet supportive care needs could help medical staff in providing high quality of care. This study aimed to gain insights into the supportive care needs of discharged patients with esophageal cancer after esophagectomy.

METHOD

A descriptive qualitative study design was used. A purposive sample of 20 patients was studied using semi-structured interviews. The thematic analysis approach was used to analyze the data.

RESULTS

Four themes and 14 sub-themes emerged from the analysis: (1) symptom management needs (dysphagia, reflux, fatigue, and other symptoms), (2) dietary and nutritional needs (unclear nutrition information, eating habit change, and dining out restriction), (3) psychosocial adjustment needs (stigma, dependency, fear of recurrence, and desire for normalcy), and (4) social support needs (medical staff support, family support, and peer support).

CONCLUSION

Chinese patients with esophageal cancer have various unmet supportive care needs after esophagectomy. Medical professionals should recognize patients' unmet supportive care needs in time, provide professional access and practical guidance, relieve their bad mood, and fully utilize online communicating channels, such as a consulting platform or a WeChat group, for further support.

摘要

目的

食管癌患者在手术后会经历身体和心理社会方面的困难。了解他们未满足的支持性护理需求可以帮助医务人员提供高质量的护理。本研究旨在深入了解接受食管癌根治性手术后出院患者的支持性护理需求。

方法

采用描述性定性研究设计。使用半结构式访谈对 20 名患者进行了目的性抽样研究。采用主题分析方法对数据进行分析。

结果

从分析中得出四个主题和 14 个亚主题:(1)症状管理需求(吞咽困难、反流、疲劳和其他症状),(2)饮食和营养需求(营养信息不明确、饮食习惯改变和外出就餐限制),(3)心理社会调整需求(耻辱感、依赖性、对复发的恐惧和对正常生活的渴望),以及(4)社会支持需求(医务人员支持、家庭支持和同伴支持)。

结论

中国食管癌患者在接受食管癌根治性手术后存在各种未满足的支持性护理需求。医务人员应及时认识到患者未满足的支持性护理需求,提供专业的帮助和实用的指导,缓解他们的不良情绪,并充分利用在线沟通渠道,如咨询平台或微信小组,提供进一步的支持。

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