Health Services Research Group, Murdoch Children's Research Institute, Melbourne, Victoria, Australia
Faculty of Education, Monash University, Clayton, Victoria, Australia.
Arch Dis Child. 2023 Oct;108(10):857-861. doi: 10.1136/archdischild-2023-325473. Epub 2023 Jun 8.
To explore caregivers' experiences and challenges of accessing help for adversity across both health and social care sectors.
Qualitative study design using semistructured interviews to explore how caregivers accessed services across health and social care. Interviews were audio recorded, transcribed verbatim and analysed using reflexive thematic analysis.
Families living in the city of Wyndham, Victoria, Australia.
17 caregivers of children aged 0-8 years.
Five main themes emerged. (1) Emotional work of getting help. Caregivers described that getting help for life challenges was both emotionally taxing and effortful. (2) Trusting relationships are key. Engagement was related to the degree of relational practice and whether they felt judged or demeaned. (3) Wanting to manage on your own. There was a strong desire by caregivers to be independent and to only seek help when it was absolutely necessary. (4) Importance of knowing help was available and how to access it. (5) Overcoming service access barriers including long waiting times, restricted service criteria, transport issues and out-of-pocket expenses.
Caregivers highlighted a multitude of barriers to getting help for life challenges. Addressing these barriers will require services to become more flexible and codesign best approaches with families in ongoing partnership. Improving community knowledge of available services and building trusting relationships is the first step to overcoming these barriers.
探索照顾者在卫生和社会保健两个部门获取逆境帮助的经验和挑战。
使用半结构式访谈的定性研究设计，探索照顾者如何在卫生和社会保健部门获取服务。访谈进行了录音、逐字转录，并使用反思性主题分析进行了分析。
澳大利亚维多利亚州温德姆市的家庭。
17 名 0-8 岁儿童的照顾者。
出现了五个主要主题。（1）获得帮助的情感劳动。照顾者描述说，获得生活挑战的帮助既耗费情感又费力。（2）信任关系是关键。参与度与关系实践的程度以及他们是否感到被评判或贬低有关。（3）想要独立管理。照顾者强烈希望独立，只有在绝对必要时才寻求帮助。（4）了解帮助的重要性以及如何获得帮助。（5）克服服务获取障碍，包括长时间等待、限制服务标准、交通问题和自付费用。
照顾者强调了获取生活挑战帮助的诸多障碍。解决这些障碍需要服务变得更加灵活，并与家庭持续合作设计最佳方法。提高社区对现有服务的认识并建立信任关系是克服这些障碍的第一步。
