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“这涉及很多方面”:癌症患儿的黑人及西班牙裔父母面临的家庭物质困难

"It's a lot of things": Household material hardship among Black and Hispanic parents of children with cancer.

作者信息

Valenzuela Ariana, Hawkins Alexandria, Revette Anna, Chen Li, Xiong Niya, Mazzola Emanuele, Eche Ijeoma J, Karvonen Kristine, Snaman Jennifer M, Wolfe Joanne, Bona Kira, Umaretiya Puja J

机构信息

Department of Pediatric Oncology, Dana-Farber Cancer Institute, Boston, Massachusetts, USA.

Division of Population Sciences, Dana-Farber Cancer Institute, Boston, Massachusetts, USA.

出版信息

Pediatr Blood Cancer. 2023 Jun 13:e30485. doi: 10.1002/pbc.30485.

Abstract

Household material hardship (HMH)-housing, food, transportation, or utility insecurity-is an adverse social determinant of health that is modifiable in the clinical setting. This mixed-methods, single-center study explored the experiences of HMH among Black and Hispanic pediatric oncology parents utilizing a single timepoint survey (N = 60) and semi-structured interviews (N = 20 purposively sampled subcohort). Forty-four (73%) parents reported HMH. Qualitatively, participants expressed stress, anxiety, and embarrassment due to unmet basic resource needs, and childcare emerged as an additional important domain of HMH. Participants recommend a standardized approach to HMH screening and resource allocation, offering insight into targets for future intervention.

摘要

家庭物质困难(HMH)——住房、食品、交通或水电供应方面的不安全——是一种可在临床环境中加以改善的不良健康社会决定因素。这项混合方法的单中心研究,通过单时间点调查(N = 60)和半结构化访谈(N = 20,为目的抽样子队列),探索了黑人与西班牙裔儿科肿瘤患儿家长经历家庭物质困难的情况。44名(73%)家长报告有家庭物质困难。在定性方面,参与者表示,由于基本资源需求未得到满足,他们感到压力、焦虑和尴尬,并且儿童保育成为家庭物质困难的另一个重要领域。参与者建议采用标准化的家庭物质困难筛查和资源分配方法,为未来干预的目标提供了见解。

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Household material hardship in families of children post-chemotherapy.化疗后儿童家庭中的家庭物质困难
Pediatr Blood Cancer. 2018 Jan;65(1). doi: 10.1002/pbc.26743. Epub 2017 Sep 20.

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