Valenzuela Ariana, Hawkins Alexandria, Revette Anna, Chen Li, Xiong Niya, Mazzola Emanuele, Eche Ijeoma J, Karvonen Kristine, Snaman Jennifer M, Wolfe Joanne, Bona Kira, Umaretiya Puja J
Department of Pediatric Oncology, Dana-Farber Cancer Institute, Boston, Massachusetts, USA.
Division of Population Sciences, Dana-Farber Cancer Institute, Boston, Massachusetts, USA.
Pediatr Blood Cancer. 2023 Jun 13:e30485. doi: 10.1002/pbc.30485.
Household material hardship (HMH)-housing, food, transportation, or utility insecurity-is an adverse social determinant of health that is modifiable in the clinical setting. This mixed-methods, single-center study explored the experiences of HMH among Black and Hispanic pediatric oncology parents utilizing a single timepoint survey (N = 60) and semi-structured interviews (N = 20 purposively sampled subcohort). Forty-four (73%) parents reported HMH. Qualitatively, participants expressed stress, anxiety, and embarrassment due to unmet basic resource needs, and childcare emerged as an additional important domain of HMH. Participants recommend a standardized approach to HMH screening and resource allocation, offering insight into targets for future intervention.
家庭物质困难(HMH)——住房、食品、交通或水电供应方面的不安全——是一种可在临床环境中加以改善的不良健康社会决定因素。这项混合方法的单中心研究,通过单时间点调查(N = 60)和半结构化访谈(N = 20,为目的抽样子队列),探索了黑人与西班牙裔儿科肿瘤患儿家长经历家庭物质困难的情况。44名(73%)家长报告有家庭物质困难。在定性方面,参与者表示,由于基本资源需求未得到满足,他们感到压力、焦虑和尴尬,并且儿童保育成为家庭物质困难的另一个重要领域。参与者建议采用标准化的家庭物质困难筛查和资源分配方法,为未来干预的目标提供了见解。