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尽管被困在呼吸困难中,仍努力争取呼吸更轻松的时刻:慢性阻塞性肺疾病 III 或 IV 期女性感觉良好的意义。

Striving for moments of easier breathing despite being trapped in breathlessness: meanings of feeling well for women with chronic obstructive pulmonary disease stage III or IV.

机构信息

Department of Health Sciences Mid Sweden University, Sundsvall, Sweden.

出版信息

Int J Qual Stud Health Well-being. 2023 Dec;18(1):2225937. doi: 10.1080/17482631.2023.2225937.

DOI:10.1080/17482631.2023.2225937
PMID:37331013
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10281416/
Abstract

BACKGROUND

Living with chronic obstructive pulmonary disease stage III or IV means living an everyday life, severely restricted by breathlessness.

AIM

The aim of this study was to elucidate meanings of feeling well for women with chronic obstructive pulmonary disease stage III or IV.

METHOD

The study has used a phenomenological hermeneutical design. Individual narrative interviews were conducted with 14 women with chronic obstructive pulmonary disease at stages III or IV.

RESULTS

The results revealed one theme: striving for moments of easier breathing despite being trapped in breathlessness with four subthemes: acting in rhythm with breathing, taking care of oneself, taking advantage of better moments, and being in togetherness in everyday life.

CONCLUSION

This study shows that women with chronic obstructive pulmonary disease at stages III or IV strived for moments of feeling well despite living with a severe illness. Feeling well meant that when connected to nature, they felt alive, free, and less trapped in breathlessness, which provided a sense of being unconscious of their breathing rhythm. They could do what healthy people tend to take for granted during everyday life. To feel well, the women found it important to receive tailored support from their close relatives.

摘要

背景

患有 III 或 IV 期慢性阻塞性肺疾病意味着日常生活受到严重限制,呼吸困难。

目的

本研究旨在阐明 III 或 IV 期慢性阻塞性肺疾病女性感觉良好的含义。

方法

本研究采用了现象学诠释设计。对 14 名 III 或 IV 期慢性阻塞性肺疾病女性进行了个体叙事访谈。

结果

结果揭示了一个主题:尽管被困在呼吸困难中,仍努力争取呼吸更轻松的时刻,有四个副标题:与呼吸保持同步、照顾自己、利用更好的时刻、在日常生活中共同生活。

结论

本研究表明,患有 III 或 IV 期慢性阻塞性肺疾病的女性尽管患有严重疾病,但仍努力争取感觉良好的时刻。感觉良好意味着当与大自然相连时,她们感到充满活力、自由,并且不那么被困在呼吸困难中,这让她们感觉不到自己的呼吸节奏。她们可以在日常生活中做一些健康人往往认为理所当然的事情。为了感觉良好,这些女性发现从亲密的亲戚那里获得量身定制的支持很重要。

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Existential suffering in the day to day lives of those living with palliative care needs arising from chronic obstructive pulmonary disease (COPD): A systematic integrative literature review.慢性阻塞性肺疾病(COPD)患者日常护理需求引发的存在性痛苦:系统综合文献回顾。
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Living with an ever-present breathlessness: Women's experiences of living with chronic obstructive pulmonary disease stage III or IV.与持续存在的呼吸困难共存:慢性阻塞性肺疾病 III 或 IV 期患者的生活体验。
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Two faces of the same coin: a qualitative study of patients' and carers' coexistence with chronic breathlessness associated with chronic obstructive pulmonary disease (COPD).同一枚硬币的两面:一项对慢性阻塞性肺疾病(COPD)相关慢性呼吸困难患者和护理者共存的定性研究。
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Measuring quality of life in COPD patients: comparing disease-specific supplements to the EQ-5D-5L.评估 COPD 患者的生活质量:比较疾病特异性补充剂与 EQ-5D-5L。
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