Department of Nursing, Mid Sweden University, Sundsvall, Sweden.
Scand J Caring Sci. 2022 Dec;36(4):1064-1073. doi: 10.1111/scs.12998. Epub 2021 May 18.
Living with chronic obstructive pulmonary disease stage III or IV has a major impact on a person's everyday life. This qualitative study focuses on women with chronic obstructive pulmonary disease stage III or IV.
The aim of this study was to describe women's experiences of living with chronic obstructive pulmonary disease stage III or IV.
A purposive sample of fifteen women with chronic obstructive pulmonary disease stage III or IV participated in the study. Data were collected through individual semi-structured interviews that were subjected to qualitative content analysis.
One theme was identified, stabilizing an ever-present breathlessness by restoring strength, and three categories are as follows: managing a restricted everyday life as an expert of their illness, being afraid of contracting infections leading to suffocation and suffering and importance of continuous help and support from significant others and digital media. Breathlessness restricted women with chronic obstructive pulmonary disease, living with a body they have to wait for. Managing everyday life was adapted to their limited abilities and energy. This required detailed planning, good knowledge of their breathing and body. Women were afraid of contracting life-threatening infections that caused suffering, especially COVID-19. The fear leads to isolation and digital media was described as an important means of communication. Significant others gave support and help that was practical and emotional. Women with chronic obstructive pulmonary disease experienced lack of continuous help and support from healthcare professionals.
Stabilizing an ever-present breathlessness by restoring strength required women with chronic obstructive pulmonary disease stage III or IV to conduct detailed planning to manage everyday life. Being afraid of contracting infections and the consequences of suffocation had increased since the pandemic COVID-19 outbreak, which led to self-isolation and an inactive everyday life. To get help, support and socialize, women used digital media.
患有慢性阻塞性肺疾病 III 或 IV 期会对一个人的日常生活产生重大影响。本定性研究侧重于 III 或 IV 期慢性阻塞性肺疾病的女性患者。
本研究旨在描述女性患有慢性阻塞性肺疾病 III 或 IV 期的生活体验。
本研究采用目的抽样法选取了 15 名患有慢性阻塞性肺疾病 III 或 IV 期的女性患者。通过个体半结构化访谈收集数据，采用定性内容分析法进行分析。
确定了一个主题，即通过恢复体力来稳定持续存在的呼吸困难，并确定了三个类别，如下：作为疾病专家来管理受限的日常生活、害怕感染导致窒息和痛苦以及来自重要他人和数字媒体的持续帮助和支持的重要性。呼吸困难限制了患有慢性阻塞性肺疾病的女性患者，使她们生活在一个需要等待的身体里。日常生活的管理适应了她们有限的能力和精力。这需要详细的计划、对呼吸和身体的良好了解。女性患者害怕感染危及生命的感染，导致痛苦，尤其是 COVID-19。这种恐惧导致了孤立和对数字媒体的依赖，将其描述为一种重要的沟通手段。重要他人给予了实际和情感上的支持和帮助。患有慢性阻塞性肺疾病的女性患者经历了缺乏来自医疗保健专业人员的持续帮助和支持。
通过恢复体力来稳定持续存在的呼吸困难，需要 III 或 IV 期慢性阻塞性肺疾病患者进行详细的计划来管理日常生活。自 COVID-19 大流行以来，对感染和窒息后果的恐惧增加了，导致了自我隔离和不活跃的日常生活。为了获得帮助、支持和社交，女性患者使用了数字媒体。
