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“我不仅仅是我的标签”:权利、斗争、验证和协商。与残疾青年一起探讨关于残疾儿童的理论争论。

'I am more than just my label': Rights, fights, validation and negotiation. Exploring theoretical debates on childhood disability with disabled young people.

机构信息

Department of Social Work, Care and Community, School of Social Sciences, Nottingham Trent University, Nottingham, UK.

School of Education and Sociology, University of Portsmouth, Portsmouth, Hampshire, UK.

出版信息

Sociol Health Illn. 2023 Jul;45(6):1376-1392. doi: 10.1111/1467-9566.13678. Epub 2023 Jun 21.

Abstract

Through the creation of safe spaces in which to explore and challenge dominant negative views of disabled children and young people, this co-written paper presents unique insight into the meaning and impact upon disabled young people's lives of medical lenses and deficit models of disability. Bodies of work and dominant debates in medical sociology, disability studies and childhood studies have so far largely overlooked the experiences and positioning of disabled children and young people and have rarely involved them in the development or discussion of theory. Drawing on empirical data, and through a series of creative, reflective workshops with a UK-based disabled young researchers' collective (RIP:STARS), this paper discusses areas of theoretical importance identified by the disabled young researcher collective-the validation of their lives, negotiation of their identity and acceptance in society. The implications, and possibilities, of platforming disabled children and young people's voices in theoretical debates are deliberated and are achieved through the yielding of privileged academic voice and the development of a symbiotic, genuine partnership which resonates with disabled young people and recognises them as experts in their own lives.

摘要

通过创造安全的空间,探索和挑战对残疾儿童和青少年的主导性负面观点,这篇合著论文提供了对残疾年轻人生活中医疗视角和残疾缺陷模式的意义和影响的独特见解。医学社会学、残疾研究和儿童研究领域的大量作品和主导性辩论迄今为止在很大程度上忽视了残疾儿童和年轻人的经历和定位,并且很少让他们参与理论的发展或讨论。本文利用实证数据,并通过与一个总部位于英国的残疾青年研究人员集体(RIP:STARS)进行一系列创造性、反思性的研讨会,讨论了残疾青年研究人员集体确定的理论重要领域——他们生活的验证、身份的协商以及在社会中的接受。通过赋予残疾儿童和年轻人在理论辩论中的发言权,并发展出一种共生的、真正的伙伴关系,这种关系与残疾年轻人产生共鸣,并承认他们是自己生活中的专家,来审议和实现让残疾儿童和年轻人的声音在理论辩论中得到体现的意义和可能性。

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