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普拉德-威利综合征患儿的食物社交化:一个跨学科问题

Food socialization of children with Prader-Willi syndrome: an interdisciplinary problematization.

作者信息

Rochedy Amandine, Valette Marion, Tauber Maithé, Poulain Jean Pierre

机构信息

Université Toulouse-Jean Jaurès, Toulouse, France.

UMR5044 Centre d'Etude et de Recherche Travail, Organisation, Pouvoir (CERTOP), Toulouse, Midi-Pyrénées, France.

出版信息

Front Nutr. 2023 Jun 6;10:1177348. doi: 10.3389/fnut.2023.1177348. eCollection 2023.

DOI:10.3389/fnut.2023.1177348
PMID:37346908
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10280295/
Abstract

Eating "disorders" of people with Prader-Willi syndrome are frequently reported in the biomedical literature. The eating behaviors are presented as a syndrome-specific trajectory over the course of a lifetime. Infants initially show anorexic behavior, which then develops into hyperphagia that lasts from childhood to adulthood and is characterized by strong cravings for food and relentless thinking about it. However, the sociocultural determinants of these food practices are not fully understood. In the first section of this article, we carry out a literature review of medical articles published on disordered eating in children with PWS. The second section draws on a social science perspective and offers an interdisciplinary problematization using the concept of food socialization. To conclude, the third section explores the challenges facing research and new questions that emerge from the alternative problematization that is the PWS Food Social Norms Internalization (FSNI) theory.

摘要

普拉德-威利综合征患者的饮食“紊乱”在生物医学文献中经常被报道。这些饮食行为在一生中呈现出特定综合征的轨迹。婴儿最初表现出厌食行为,随后发展为暴饮暴食,这种行为从童年持续到成年,其特征是对食物有强烈的渴望并不断思考食物。然而,这些饮食行为的社会文化决定因素尚未得到充分理解。在本文的第一部分,我们对发表的关于普拉德-威利综合征患儿饮食紊乱的医学文章进行了文献综述。第二部分借鉴社会科学视角,运用食物社会化的概念进行跨学科问题分析。最后,第三部分探讨了研究面临的挑战以及从替代问题分析即普拉德-威利综合征食物社会规范内化(FSNI)理论中出现的新问题。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b3af/10280295/d58589f24fdc/fnut-10-1177348-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b3af/10280295/762fb5528308/fnut-10-1177348-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b3af/10280295/d58589f24fdc/fnut-10-1177348-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b3af/10280295/762fb5528308/fnut-10-1177348-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b3af/10280295/d58589f24fdc/fnut-10-1177348-g002.jpg

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Lancet Diabetes Endocrinol. 2021 Apr;9(4):235-246. doi: 10.1016/S2213-8587(21)00002-4. Epub 2021 Feb 26.
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What can we learn from PWS and SNORD116 genes about the pathophysiology of addictive disorders?从 PWS 和 SNORD116 基因中我们能了解到成瘾障碍的病理生理学的哪些知识?
Mol Psychiatry. 2021 Jan;26(1):51-59. doi: 10.1038/s41380-020-00917-x. Epub 2020 Oct 20.
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Coping with Wolf-Hirschhorn syndrome: quality of life and psychosocial features of family carers.
应对沃尔夫-贺希洪综合征:家庭照顾者的生活质量和社会心理特征。
Orphanet J Rare Dis. 2020 Oct 19;15(1):293. doi: 10.1186/s13023-020-01476-8.
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Is Oxytocin "Nature's Medicine"?催产素是“大自然的良药”吗?
Pharmacol Rev. 2020 Oct;72(4):829-861. doi: 10.1124/pr.120.019398.
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Prader-Willi syndrome: A model for understanding the ghrelin system.普拉德-威利综合征:了解脑肠肽系统的模型。
J Neuroendocrinol. 2019 Jul;31(7):e12728. doi: 10.1111/jne.12728. Epub 2019 May 23.
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