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英国为生有唇腭裂儿童制定的护理路径介绍。

An introduction to the UK care pathway for children born with a cleft of the lip and/or palate.

机构信息

Bristol Dental School, University of Bristol, Bristol, UK; The Spires Cleft Centre, John Radcliffe Hospital, Oxford, United Kingdom.

The Spires Cleft Centre, John Radcliffe Hospital, Oxford, United Kingdom.

出版信息

Br Dent J. 2023 Jun;234(12):943-946. doi: 10.1038/s41415-023-5998-z. Epub 2023 Jun 23.

DOI:10.1038/s41415-023-5998-z
PMID:37349451
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10287563/
Abstract

Cleft lip and/or palate includes a spectrum of congenital disorders affecting union on the lip, alveolus, hard and/or soft palate. The management of children born with an orofacial cleft requires a complex process from a multidisciplinary team (MDT) to restore form and function. Since the Clinical Standards Advisory Group (CSAG) report in 1998, the UK has reformed and restructured cleft services to improve the outcomes for children born with a cleft.The spectrum of cleft conditions, the members of the MDT and a chronological description of the stages of cleft management from diagnosis to adulthood are described using a clinical example. This paper forms the introduction to a series of more detailed papers which span all major aspects of cleft management. The papers will cover the following topics: dental anomalies; associated medical conditions among children; orthodontic management of patients; speech assessment and intervention; role of the clinical psychologist; challenges for the paediatric dentist; genetics and orofacial clefts; surgery - primary and secondary; restorative dentistry; and global perspectives.

摘要

唇裂和/或腭裂包括一系列先天性疾病,影响唇、牙槽骨、硬腭和/或软腭的联合。患有唇腭裂的儿童的管理需要多学科团队(MDT)的复杂过程来恢复形态和功能。自 1998 年临床标准咨询小组(CSAG)报告以来,英国已经改革和重组了腭裂服务,以改善腭裂儿童的治疗效果。本文通过一个临床实例,描述了唇腭裂的各种情况、MDT 的成员以及从诊断到成年的腭裂管理各个阶段的时间顺序描述。本文是一系列更详细论文的介绍,涵盖了腭裂管理的所有主要方面。这些论文将涵盖以下主题:牙齿异常;患儿的相关医疗状况;患者的正畸管理;语音评估和干预;临床心理学家的作用;儿科牙医的挑战;遗传学与唇腭裂;手术-原发性和继发性;修复牙科;以及全球视角。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ff94/10287563/0b648136a57e/41415_2023_5998_Fig4_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ff94/10287563/348eeffef8cd/41415_2023_5998_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ff94/10287563/77c6f05dabac/41415_2023_5998_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ff94/10287563/0b648136a57e/41415_2023_5998_Fig4_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ff94/10287563/348eeffef8cd/41415_2023_5998_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ff94/10287563/77c6f05dabac/41415_2023_5998_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ff94/10287563/0b648136a57e/41415_2023_5998_Fig4_HTML.jpg

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BMC Oral Health. 2023 Sep 25;23(1):689. doi: 10.1186/s12903-023-03388-y.

本文引用的文献

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The restorative dentistry management of adult cleft patients: 'the adult returner'.成人唇腭裂患者的修复牙科管理:“成人复诊者”。
Br Dent J. 2023 Jun;234(12):906-911. doi: 10.1038/s41415-023-5996-1. Epub 2023 Jun 23.
3
Secondary surgery techniques to optimise functional and aesthetic outcomes in orofacial clefting.
口腔颌面裂隙中优化功能和美学效果的二次手术技术。
Br Dent J. 2023 Jun;234(12):899-905. doi: 10.1038/s41415-023-6001-8. Epub 2023 Jun 23.
4
Challenges for dental care of the paediatric patient born with cleft lip and/or palate.唇腭裂患儿的口腔护理挑战。
Br Dent J. 2023 Jun;234(12):867-871. doi: 10.1038/s41415-023-5995-2. Epub 2023 Jun 23.
5
The role of primary surgery in the management of orofacial clefting.口腔颌面裂的治疗中初次手术的作用。
Br Dent J. 2023 Jun;234(12):859-866. doi: 10.1038/s41415-023-6002-7. Epub 2023 Jun 23.
6
CLEFT-Q: Detecting Differences in Outcomes among 2434 Patients with Varying Cleft Types.CLEFT-Q:检测 2434 例不同类型裂患者结局的差异。
Plast Reconstr Surg. 2019 Jul;144(1):78e-88e. doi: 10.1097/PRS.0000000000005723.
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Are people with an orofacial cleft at a higher risk of dental caries? A systematic review and meta-analysis.患有口腔颌面裂隙的人患龋齿的风险更高吗?一项系统评价和荟萃分析。
Br Dent J. 2017 Jul 7;223(1):37-47. doi: 10.1038/sj.bdj.2017.581.
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Centralization of cleft care in the UK. Part 6: a tale of two studies.英国唇腭裂护理的集中化。第6部分:两项研究的故事。
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Orthod Craniofac Res. 2015 Nov;18 Suppl 2(Suppl 2):36-46. doi: 10.1111/ocr.12112.