L'Hotta Allison J, Varughese Taniya E, Lyons Kathleen D, Simon Laura, King Allison A
Washington University School of Medicine, St. Louis, MO, USA.
Dartmouth-Hitchcock Medical Center, Norris Cotton Cancer Center, Lebanon, NH, USA.
Support Care Cancer. 2020 Aug;28(8):3581-3592. doi: 10.1007/s00520-020-05441-w. Epub 2020 Apr 13.
Individuals with cancer are at high risk for restricted participation in meaningful life activities such as work, school, and social activities. Evaluating participation in life activities is identified as a critical component of rehabilitation referral and triage systems. This scoping review investigates what assessments are used to measure participation in life activities in individuals with cancer.
Six databases were systematically searched using keywords and controlled vocabulary through February 2020. Eligible studies used the term participation in the context of life situations and had an assessment with at least 5 participation-specific questions.
A total of 4604 unique articles were identified and screened for eligibility. Thirty-two studies were included; 20 unique assessments of participation were identified. Assessments were developed with the primary purpose of measuring participation (n = 8); global or physical function (n = 9); community integration (n = 1); social activity (n = 1); or occupational gaps (n = 1). Most assessments (12/20) were not developed with the purpose of measuring participation and only 4 assessments measured key components of participation other than frequency.
Measuring participation in life activities is a developing area in oncology research. Most studies do not accurately or comprehensively measure this construct. The heterogeneity in assessments used indicates no clear consensus on a gold-standard participation measure for use among cancer survivors. Comprehensively measuring participation will help identify individuals in need of rehabilitation services and is an essential first step to inform the development of targeted interventions to enhance participation.
癌症患者参与工作、学校和社交活动等有意义生活活动的受限风险很高。评估生活活动参与情况被确定为康复转诊和分诊系统的关键组成部分。本范围综述调查了用于测量癌症患者生活活动参与情况的评估方法。
截至2020年2月，使用关键词和控制词汇对六个数据库进行了系统检索。符合条件的研究在生活情境中使用了“参与”一词，并且有一项评估至少包含5个特定于参与的问题。
共识别并筛选了4604篇独特文章的资格。纳入了32项研究；确定了20种独特的参与评估方法。开发这些评估方法的主要目的是测量参与情况（n = 8）；整体或身体功能（n = 9）；社区融入（n = 1）；社交活动（n = 1）；或职业差距（n = 1）。大多数评估方法（12/20）并非为测量参与情况而开发，只有4种评估方法测量了频率以外的参与关键组成部分。
测量生活活动参与情况是肿瘤学研究中的一个发展领域。大多数研究没有准确或全面地测量这一概念。所使用评估方法的异质性表明，对于癌症幸存者使用的金标准参与测量方法尚无明确共识。全面测量参与情况将有助于识别需要康复服务的个体，并且是为制定有针对性的干预措施以提高参与度提供信息的重要第一步。
