为阿尔茨海默病及相关痴呆症患者的护理伙伴共同设计财务和法律规划工具。

Co-Design of a Financial and Legal Planning Tool for Care Partners of People Living With Alzheimer's Disease and Related Dementias.

作者信息

Jolliff Anna, Dudek Alex, Zuraw Matthew, Parks Reid, Linden Anna, Elliott Christian, Werner Nicole E

机构信息

Department of Health and Wellness Design, Indiana University-Bloomington, Bloomington, Indiana, USA.

Department of Industrial and Systems Engineering, University of Wisconsin-Madison, Madison, Wisconsin, USA.

出版信息

Innov Aging. 2023 Jun 3;7(5):igad046. doi: 10.1093/geroni/igad046. eCollection 2023.

DOI:10.1093/geroni/igad046

PMID:37360216

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10287190/

Abstract

BACKGROUND AND OBJECTIVES

Care partners of people living with Alzheimer's disease and related dementias (ADRD) are faced with substantial legal and financial planning related to their care partner role. However, many care partners lack the legal and financial support needed to manage this role. The purpose of this study was to engage ADRD care partners in a remote participatory design process to create a technology-based financial and legal planning tool that meets care partner needs.

RESEARCH DESIGN AND METHODS

We formed 2 researcher-facilitated co-design teams comprised of = 5 ADRD care partners each. We conducted a series of 5 parallel co-design sessions aimed to engage co-designers in interactive discussions and design activities to create the financial and legal planning tool. We used inductive thematic analysis of design session recordings to identify design requirements.

RESULTS

Co-designers were 70% female with a mean age of 67.3 years (standard deviation 9.07) and cared for a spouse (80%) or a parent (20%). Between Sessions 3 and 5, the average system usability scale score of the prototype increased from 89.5 to 93.6, indicating high usability. Analyses yielded 7 overarching design requirements for a legal and financial planning tool: support for action now (eg, prioritized to-do lists); support for action later (eg, reminders for keeping legal documents up-to-date); knowledge when I need it (eg, tailored learning modules); connection to resources I need (eg, state-specific financial support opportunities); everything where I can see it (eg, comprehensive care budgeting tool); sense of privacy and security (eg, password protection); and accessibility for all (eg, tailoring for low-income care partners).

DISCUSSION AND IMPLICATIONS

The design requirements identified by co-designers provide a foundation from which we can build technology-based solutions to support ADRD care partners in financial and legal planning.

摘要

背景与目标

阿尔茨海默病及相关痴呆症（ADRD）患者的护理伙伴面临着与他们的护理伙伴角色相关的大量法律和财务规划问题。然而，许多护理伙伴缺乏管理这一角色所需的法律和财务支持。本研究的目的是让ADRD护理伙伴参与远程参与式设计过程，以创建一个满足护理伙伴需求的基于技术的财务和法律规划工具。

研究设计与方法

我们组建了2个由研究人员协助的共同设计团队，每个团队由5名ADRD护理伙伴组成。我们进行了一系列5次平行的共同设计会议，旨在让共同设计师参与互动讨论和设计活动，以创建财务和法律规划工具。我们对设计会议记录进行归纳主题分析，以确定设计要求。

结果

共同设计师中70%为女性，平均年龄为67.3岁（标准差9.07），照顾的对象为配偶（80%）或父母（20%）。在第3次和第5次会议之间，原型的平均系统可用性量表得分从89.5提高到93.6，表明可用性较高。分析得出了法律和财务规划工具的7项总体设计要求：支持立即行动（例如，优先待办事项清单）；支持日后行动（例如，提醒更新法律文件）；在我需要时提供知识（例如，量身定制的学习模块）；连接我所需的资源（例如，特定州的财务支持机会）；所有内容都在我能看到的地方（例如，全面的护理预算工具）；隐私和安全感（例如，密码保护）；以及对所有人都可访问（例如，为低收入护理伙伴量身定制）。