Faculty of Medicine and Health, The University of Sydney, Sydney, NSW, Australia.
Faculty of Health, Deakin University, Geelong, Victoria, Australia.
Aust J Rural Health. 2023 Aug;31(4):631-647. doi: 10.1111/ajr.13011. Epub 2023 Jun 27.
Australia's National Disability Insurance Scheme (NDIS) was launched in 2013 to provide financial support packages for people with disability to purchase supports and services to enhance independence. People with disability are required to develop a plan with the National Disability Insurance Agency (NDIA), the government department responsible for managing the NDIS. This scoping review aims to ascertain the level of research into people's experience of the NDIS planning process in these geographic areas.
Research publication databases were searched using a specific search string to identify research about people with disability and their families/carer's experiences of the NDIS planning process in regional, rural and remote regions of Australia. The Mixed Methods Appraisal Tool (MMAT) was adopted to appraise the quality of the research publications. Research publications focused on Aboriginal and Torres Strait Islander people were additionally appraised using the Aboriginal and Torres Strait Islander Quality Appraisal Tool developed by the Centre for Excellence in Aboriginal Chronic Disease Knowledge Translation and Exchange. A thematic synthesis of the publications' contents was undertaken to ascertain people with disabilities and carers experience of the NDIS planning process.
Ten (N = 10) research papers were found that met the inclusion criteria. Two papers were policy reviews and reported on the improvements of the NDIS planning process since its conception. The analysis found the research archive focused on five themes: (1) healthcare workforce and NDIA staff; (2) NDIS package holders and carers lack of awareness of the NDIS; (3) cultural/socio-economic barriers; (4) travel funding; and (5) emotional burden of the NDIS planning process.
There are limited papers available that explore people's experiences of the NDIS planning process in regional, rural and remote regions of Australia. This systematic review illuminates the difficulties, barriers and concerns of people with disability and their carers about the planning process.
澳大利亚国家残疾保险计划（NDIS）于 2013 年启动，旨在为残疾人提供财政支持计划，以购买支持和服务，增强独立性。残疾人需要与国家残疾保险局（NDIA）制定计划，该政府部门负责管理 NDIS。本范围界定审查旨在确定在这些地理区域中，人们对 NDIS 规划过程的经验研究水平。
使用特定的搜索字符串搜索研究出版物数据库，以确定有关澳大利亚地区、农村和偏远地区残疾人及其家庭/照顾者对 NDIS 规划过程的经验的研究。采用混合方法评估工具（MMAT）评估研究出版物的质量。此外，还使用卓越土著慢性病知识转化和交流中心开发的土著和托雷斯海峡岛民质量评估工具评估专门针对土著和托雷斯海峡岛民的研究出版物。对出版物的内容进行主题综合，以确定残疾人和照顾者对 NDIS 规划过程的经验。
发现了符合纳入标准的十篇（N=10）研究论文。有两篇论文是政策审查，报告了自成立以来 NDIS 规划过程的改进情况。分析发现，研究档案集中在五个主题：（1）医疗保健劳动力和 NDIA 工作人员；（2）NDIS 套餐持有者和照顾者对 NDIS 的认识不足；（3）文化/社会经济障碍；（4）旅行资金；（5）NDIS 规划过程的情感负担。
在澳大利亚地区、农村和偏远地区，有关人们对 NDIS 规划过程的经验的论文数量有限。本系统评价阐明了残疾人和他们的照顾者对规划过程的困难、障碍和关注。
