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针对居住在区域、农村和偏远地区的残疾的原住民和托雷斯海峡岛民儿童的早期儿童支持的范围综述。

A scoping review of early childhood support for Aboriginal and Torres Strait Islander children living with a disability in regional, rural and remote settings.

机构信息

Department of Paediatrics, University of Melbourne, Melbourne, Victoria, Australia.

Centre for Community Child Health, Murdoch Children's Research Institute, Melbourne, Victoria, Australia.

出版信息

Aust J Rural Health. 2024 Oct;32(5):890-905. doi: 10.1111/ajr.13164. Epub 2024 Jul 11.

Abstract

INTRODUCTION

Many experts and communities have concerns about how National Disability Insurance Scheme services are provided to Aboriginal and Torres Strait children. This study was undertaken at the request of the NPY Women's Council in partnership with the researchers, to explore supports for Aboriginal and Torres Strait Islander children living with a disability in their remote areas.

OBJECTIVE

This scoping review aims to (a) explore the barriers and enablers to accessing disability support services for families of young Aboriginal and Torres Strait Islander children (0-8 years) living in regional, rural and remote settings, and (b) summarise best practice approaches for accessing support for young children in these settings.

DESIGN

The search was run in three electronic databases, as well as grey literature sources. We assessed the quality of included publications using the Centre of Research Excellence in Aboriginal Chronic Disease Knowledge Translation and Exchange tool. A narrative synthesis was supported by thematic analysis.

FINDINGS

From an initial search (557 citations), we identified 13 eligible documents. Most documents were peer-reviewed articles of qualitative studies. Key themes identified included the following: (1) Holistic approach, (2) Understanding disability, (3) Consistent relationships, (4), Flexibility, (5) Simplify system and (6) Enhance communication.

DISCUSSION/CONCLUSION: This scoping review has revealed gaps in the provision of quality, culturally responsive disability services for families of Aboriginal and Torres Strait Islander children living in regional, rural and remote areas of Australia. A family-centred, flexible approach will help address their needs. Future research is required to design and evaluate models of care for Aboriginal and Torres Strait Islander children.

摘要

简介

许多专家和社区对国家残疾保险计划为原住民和托雷斯海峡岛民儿童提供的服务表示担忧。这项研究是应 NPY 妇女理事会的要求,与研究人员合作进行的,旨在探讨为生活在偏远地区的残疾原住民和托雷斯海峡岛民儿童提供支持的问题。

目的

本范围界定审查旨在:(a) 探讨在区域、农村和偏远地区生活的年轻原住民和托雷斯海峡岛民儿童(0-8 岁)家庭获得残疾支持服务的障碍和促进因素;(b) 总结在这些环境中为幼儿获得支持的最佳实践方法。

设计

在三个电子数据库中以及灰色文献来源中进行了搜索。我们使用原住民慢性疾病知识转化卓越中心工具评估了纳入出版物的质量。叙事综合得到了主题分析的支持。

结果

从最初的搜索(557 条引文)中,我们确定了 13 份符合条件的文件。大多数文件都是定性研究的同行评审文章。确定的主要主题包括:(1) 整体方法;(2) 理解残疾;(3) 保持一致的关系;(4) 灵活性;(5) 简化系统;(6) 加强沟通。

讨论/结论:这项范围界定审查揭示了澳大利亚区域、农村和偏远地区原住民和托雷斯海峡岛民儿童家庭获得优质、文化响应残疾服务方面的差距。以家庭为中心、灵活的方法将有助于满足他们的需求。需要进一步研究为原住民和托雷斯海峡岛民儿童设计和评估护理模式。

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