Department of Primary and Community Care, Radboud University Medical Centre, Radboud Institute for Health Sciences, Radboud Alzheimer Centre, Nijmegen, The Netherlands.
Alzheimer Europe, Luxembourg, Luxembourg.
J Adv Nurs. 2022 Dec;78(12):4104-4112. doi: 10.1111/jan.15385. Epub 2022 Jul 22.
We aim to identify existing empowerment interventions for people living with dementia and to explore which used interventions and projects are considered empowering and why.
This was an online survey.
We conducted an online survey between May 2018 and July 2018 amongst professionals interested in dementia care in Europe. Interventions were clustered within the ecological model for health promotion. Reasons from respondents as to why they considered interventions to be empowering were analysed and structured according to a recently developed conceptual framework of empowerment for people living with dementia.
Seventy-three respondents from 23 countries together mentioned 98 interventions or projects, of which 90 were unique. Interventions focused on the (inter)personal (n = 54), organizational (n = 15), communal (n = 6) and societal (n = 15) levels. A broad range of interventions were considered empowering, but no interventions were specifically developed for, nor aimed at, empowerment. Reasons as to why respondents considered these interventions as empowering fitted the framework's domains.
This European survey provides insights into interventions considered empowering for people living with dementia. An important step that needs to be taken is to develop and test interventions that specifically aim to promote empowerment for people living with dementia.
Empowerment may encourage people with dementia to live the life they choose, and focus on what is possible, instead of what is no longer possible. Many interventions are considered as empowering for people living with dementia, however no interventions could be identified that were specifically developed for or aimed at empowerment. This study shows that for promoting empowerment, it is necessary to develop and test interventions that specifically aim for empowerment, do this in collaboration with relevant stakeholders, and in this way support people living with dementia to live according to their competencies, talents and wishes.
本研究旨在确定现有的针对痴呆症患者的赋权干预措施，并探讨哪些干预措施和项目被认为具有赋权作用，以及原因。
这是一项在线调查。
我们于 2018 年 5 月至 7 月期间，在对欧洲痴呆症护理感兴趣的专业人士中开展了一项在线调查。干预措施根据健康促进的生态模型进行分组。根据最近为痴呆症患者制定的赋权概念框架，分析受访者认为干预措施具有赋权作用的原因，并对其进行结构化。
来自 23 个国家的 73 名受访者共提及了 98 项干预措施或项目，其中 90 项是独特的。干预措施侧重于（人际）个人层面（n=54）、组织层面（n=15）、社区层面（n=6）和社会层面（n=15）。广泛的干预措施被认为具有赋权作用，但没有专门为赋权而开发或针对赋权的干预措施。受访者认为这些干预措施具有赋权作用的原因符合该框架的各个领域。
这项欧洲调查提供了有关被认为对痴呆症患者具有赋权作用的干预措施的见解。需要采取的一个重要步骤是开发和测试专门旨在促进痴呆症患者赋权的干预措施。
赋权可能鼓励痴呆症患者过自己选择的生活，并关注可能的事情，而不是不再可能的事情。许多干预措施被认为对痴呆症患者具有赋权作用，但没有发现专门为赋权而开发或针对赋权的干预措施。本研究表明，为了促进赋权，有必要开发和测试专门针对赋权的干预措施，与相关利益相关者合作，并通过这种方式支持痴呆症患者根据自己的能力、才能和意愿生活。
