Sanctis Livio, Khirani Sonia, Vedrenne-Cloquet Meryl, Griffon Lucie, Cozzo Mathilde, Olmo Arroyo Jorge, Sidhoum Lynda, Ouss Lisa, Fauroux Brigitte
Pediatric Noninvasive Ventilation and Sleep Unit, AP-HP, Hôpital Necker-Enfants Malades, Paris, France.
EA VIFASOM, Université de Paris, Paris, France.
Pediatr Pulmonol. 2023 Oct;58(10):2750-2756. doi: 10.1002/ppul.26574. Epub 2023 Jul 4.
Improving or maintaining the quality of life of the family of children treated with long term continuous positive airway pressure (CPAP) or noninvasive ventilation (NIV) is a major concern; but studies are scarce. The aim of the study was to evaluate the impact of long term CPAP or NIV in children on anxiety, depression, quality of sleep, and quality of life of their parents.
Validated questionnaires evaluating anxiety and depression (hospital anxiety and depression scale), sleep quality (Pittsburgh sleep quality index), daytime sleepiness (Epworth sleepiness scale), and parents' quality of life (PedsQL family impact module) were completed by parents of children who were started on CPAP/NIV before (M0) and after 6-9 months (M6) of treatment.
The questionnaires of 36 parents (30 mothers, 6 fathers) of 31 children were analyzed. For the entire group, no significant change was observed in anxiety, depression, sleep quality, daytime sleepiness, and quality of life between M0 and M6. When analyzing questionnaire class changes between M0 and M6: anxiety was relieved in 23% of parents and worsened in 29%, depression was relieved in 14% and worsened in 20%, sleep quality improved in 43% and worsened in 27%, sleepiness improved in 26% and worsened in 17%, with no change in the other parents.
Long term CPAP/NIV in children had no significant effect on parents' anxiety, depression, sleep quality, and quality of life.
改善或维持接受长期持续气道正压通气（CPAP）或无创通气（NIV）治疗的儿童家庭的生活质量是一个主要关注点；但相关研究较少。本研究的目的是评估长期CPAP或NIV对儿童父母的焦虑、抑郁、睡眠质量和生活质量的影响。
在开始CPAP/NIV治疗前（M0）和治疗6 - 9个月后（M6），由儿童的父母完成评估焦虑和抑郁（医院焦虑抑郁量表）、睡眠质量（匹兹堡睡眠质量指数）、日间嗜睡（爱泼华嗜睡量表）以及父母生活质量（儿童生活质量量表家庭影响模块）的经过验证的问卷。
分析了31名儿童的36名父母（30名母亲，6名父亲）的问卷。对于整个组，在M0和M6之间，焦虑、抑郁、睡眠质量、日间嗜睡和生活质量均未观察到显著变化。分析M0和M6之间问卷类别变化时：23%的父母焦虑得到缓解，29%的父母焦虑加重；14%的父母抑郁得到缓解，20%的父母抑郁加重；43%的父母睡眠质量改善，27%的父母睡眠质量恶化；26%的父母嗜睡改善，17%的父母嗜睡恶化，其他父母无变化。
儿童长期CPAP/NIV对父母的焦虑、抑郁、睡眠质量和生活质量没有显著影响。
