University of Lausanne, Switzerland.
University of Bern, Switzerland.
Public Underst Sci. 2024 Jan;33(1):105-120. doi: 10.1177/09636625231183265. Epub 2023 Jul 17.
This empirical article explores the dynamics of exchange and reciprocity between cohorters, that is, study organizers, and cohortees, that is, study participants. Drawing on literature on bioeconomy and valuation, we analyze cohortees' expectations in return for the "clinical labor" they perform in the pilot phase of a Swiss precision public health study. Based on an ethnography of this cohort and data from seven focus groups with cohortees ( = 37), we identified four positions: (1) the good citizen participant, (2) the critical participant, (3) the concerned participant, and (4) the self-oriented participant. These reveal that cohortees' participation, still framed in altruistic terms, nevertheless engages expectations about reciprocal obligations of the state and science in terms of public health, confirming the deep entanglement of gift-based, financial, and moral economies of participation. The different values emerging from these expectations-robust scientific evidence about environmental exposure and a socially oriented public health-provide rich indications about stake making which might matter for the future of precision public health.
这篇经验性文章探讨了同组人（即研究组织者）与队列参与者（即研究参与者）之间的交流和互惠动态。本文借鉴了关于生物经济和评估的文献，分析了队列参与者在瑞士精准公共卫生研究试点阶段“临床劳动”回报方面的期望。基于对这一队列的民族志和来自七个队列参与者焦点小组的数据（=37），我们确定了四个立场：（1）好公民参与者；（2）批判参与者；（3）关注参与者；（4）自我导向参与者。这些参与者的参与仍然以利他主义为框架，但仍涉及到国家和科学在公共卫生方面的互惠义务的期望，这证实了基于礼物、金融和道德参与经济的深层交织。这些期望中出现的不同价值观——关于环境暴露的强有力的科学证据和面向社会的公共卫生——为利益相关者提供了丰富的信息，这些信息可能对精准公共卫生的未来具有重要意义。
