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测量阿拉伯语人群中对慢性病患者的公众态度:慢性病社会污名量表(SSS-CD)的适应和发展。

Measuring public attitudes towards people living with chronic diseases in Arabic-speaking populations: adaptation and development of the Social Stigma Scale of Chronic Diseases (SSS-CD).

机构信息

The Tunisian Center of Early Intervention in Psychosis, Department of Psychiatry "Ibn Omrane", Razi hospital, Manouba, 2010, Tunisia.

Faculty of Medicine of Tunis, Tunis El Manar University, Tunis, Tunisia.

出版信息

BMC Public Health. 2023 Jul 18;23(1):1375. doi: 10.1186/s12889-023-16315-1.

Abstract

BACKGROUND

A large proportion of the population in Arab countries suffer from chronic diseases. According to the statistics by the Global Health Estimates, chronic illnesses contribute by 71% to total deaths in the Arab region. While chronic illnesses have been demonstrated to carry high levels of social stigma, it is only recently that little research attention has been given to this topic in the Arab world. It is well-established that the social stigma construct is culturally-dependent. Therefore, the lack of an Arabic measure highlighted the urgent need for developing a culturally adapted and valid instrument to assess social stigma toward people living with chronic diseases. In this study, we aimed to examine the psychometric properties of the Arabic translation, adaptation and development of "the Social Stigma Scale of Chronic Diseases" (SSS-CD).

METHOD

Fifteen items derived from the literature and assessing social stigma towards chronic diseases have been administered to 570 Arabic-speaking adults from the Lebanese general population (aged 24.59 ± 6.75years; 68.6% women). Items were translated into Arabic using a forward-backward translation method. Exploratory factor analysis (EFA) using a principal-axis EFA on the first split-half subsample, followed by a confirmatory factor analysis (CFA) tested on the model extracted from the EFA on the second split-half subsample, were conducted to examine the construct validity of the SSS-CD. Fit indices were deemed adequate if the normed model chi-square (χ²/df) ≤ 3, the Steiger-Lind root mean square error of approximation (RMSEA) ≤ 0.08, the Tucker-Lewis Index (TLI) and the comparative fit index (CFI) ≥ 0.90.

RESULTS

Findings revealed that the 10-item SSS-CD has a unidimensional factor structure, with the following fit indices: χ/df = 92.95/34 = 2.73, RMSEA = 0.077 (90% CI 0.059, 0.096), SRMR = 0.062, CFI = 0.939, TLI = 0.919. A good internal consistency was demonstrated by a McDonald's omega value of 0.73 for the total score. Findings also supported invariance across gender, with men exhibiting higher levels of social stigma attached to chronic diseases than women. All three dimensions of stigmatization (social, psychological and evolutionary stigmatization) were positively correlated with SSS-CD scores (Social self-interest [r = .40; p < .001], Evolutionary self-interest [r = .37; p < .001], Psychological self-interest [r = .42; p < .001]), demonstrating relatively strong convergent validity.

CONCLUSION

Our findings suggest that the SSS-CD has robust psychometric qualities. We thus preliminarily suggest that the scale is valid, reliable and suitable for use among Arabic-speaking people from the general population to measure public attitudes towards people living with chronic diseases. Providing this psychometrically sound measure will hopefully enable to foster research in this area in order to draw a clear overview of the prevalence and characteristics of social stigma attached to chronic diseases in Arabic-speaking communities. However, given that this was the first study to examine the psychometric properties of the SSS-CD, the present findings and conclusions should be considered tentative pending future cross-national validation studies.

摘要

背景

阿拉伯国家的很大一部分人口患有慢性病。根据全球健康估计数据,慢性病在阿拉伯地区的总死亡人数中占 71%。尽管慢性疾病已经被证明带有高度的社会耻辱感,但直到最近,阿拉伯世界才开始关注这一问题。社会耻辱感的构建是文化依赖性的,这一点已经得到了很好的证明。因此,缺乏阿拉伯语的衡量标准突出表明迫切需要开发一种文化适应和有效的工具来评估人们对慢性病患者的社会耻辱感。在这项研究中,我们旨在检验“慢性病社会耻辱量表”(SSS-CD)的阿拉伯语翻译、改编和开发的心理测量学特性。

方法

从文献中提取了 15 个条目,评估了阿拉伯语成年人对慢性病的社会耻辱感,这些成年人来自黎巴嫩普通人群(年龄 24.59±6.75 岁;68.6%为女性)。使用向前向后翻译法将条目翻译为阿拉伯语。对第一半样本进行主轴 EFA,然后对第二半样本中从 EFA 中提取的模型进行验证性因素分析(CFA),以检验 SSS-CD 的结构效度。如果规范模型的卡方/自由度(χ²/df)≤3、Steiger-Lind 根均方误差逼近(RMSEA)≤0.08、Tucker-Lewis 指数(TLI)和比较拟合指数(CFI)≥0.90,则认为拟合指数是适当的。

结果

研究结果表明,10 项 SSS-CD 具有单一维度结构,以下为拟合指数:χ/df=92.95/34=2.73,RMSEA=0.077(90%CI 0.059,0.096),SRMR=0.062,CFI=0.939,TLI=0.919。麦克唐纳 omega 值为 0.73,总分为 0.73,表明具有良好的内部一致性。研究结果还支持性别间的不变性,男性对慢性病的社会耻辱感高于女性。耻辱感的三个维度(社会、心理和进化性耻辱感)与 SSS-CD 评分呈正相关(社会自我利益 [r=0.40;p<0.001],进化自我利益 [r=0.37;p<0.001],心理自我利益 [r=0.42;p<0.001]),表明具有较强的收敛效度。

结论

我们的研究结果表明,SSS-CD 具有良好的心理测量学特性。因此,我们初步建议该量表在普通人群中是有效、可靠的,适合用于衡量公众对慢性病患者的态度。提供这种具有良好心理测量学特性的衡量标准,有望促进该领域的研究,以便清晰了解阿拉伯语社区中与慢性病相关的社会耻辱感的流行程度和特征。然而,鉴于这是第一项检验 SSS-CD 的心理测量学特性的研究,目前的研究结果和结论应在未来的跨国验证研究中被视为暂定的。

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