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气候变化与让多发性硬化症患者为极端飓风做好准备的迫切需求。

Climate Change and the Urgent Need to Prepare Persons With Multiple Sclerosis for Extreme Hurricanes.

作者信息

Hsieh Sharon L, Shultz James M, Briggs Farren, Espinel Zelde, Shapiro Lauren T

机构信息

From the MD/MPH Program (SLH), University of Miami Leonard M. Miller School of Medicine, Miami, FL, USA.

Department of Public Health Sciences (JMS), University of Miami Leonard M. Miller School of Medicine, Miami, FL, USA.

出版信息

Int J MS Care. 2023 Jul-Aug;25(4):152-156. doi: 10.7224/1537-2073.2022-032. Epub 2023 Jan 23.

Abstract

Climate change is contributing to increasingly hazardous tropical cyclones that endanger persons living in susceptible coastal and island communities. People living with chronic illness, including multiple sclerosis (MS), face unique challenges and vulnerabilities when exposed to hurricane hazards. Disaster and emergency preparedness requires a customized approach that considers the necessary adaptations to accommodate the mobility, self-care, sensory, cognitive, and communication impairments of persons living with MS. Related considerations include the potential for worsening neurologic signs and symptoms during and after a catastrophic storm. The impact of emotional and financial stresses, as well as disruptions in health care delivery, on this population are also key concerns. This paper addresses the challenges faced by individuals with MS in advance of, during, and in the aftermath of extreme storms. We propose new guidelines on how health care professionals can assist persons with MS when creating tailored disaster readiness and response plans.

摘要

气候变化正导致热带气旋日益危险,危及生活在易受影响的沿海和岛屿社区的人们。患有慢性病(包括多发性硬化症(MS))的人在遭受飓风危害时面临独特的挑战和脆弱性。灾害和应急准备需要一种定制的方法,该方法要考虑到必要的调整,以适应MS患者的行动能力、自我护理能力、感官、认知和沟通障碍。相关考虑因素包括灾难性风暴期间及之后神经体征和症状恶化的可能性。情绪和经济压力以及医疗服务中断对这一人群的影响也是关键问题。本文探讨了MS患者在极端风暴来临前、期间和之后所面临的挑战。我们提出了关于医疗保健专业人员在制定量身定制的灾难准备和应对计划时如何协助MS患者的新指南。

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本文引用的文献

1
Climate change and the right to health of people with disabilities.气候变化与残疾人的健康权。
Lancet Glob Health. 2022 Jan;10(1):e24-e25. doi: 10.1016/S2214-109X(21)00542-8. Epub 2021 Dec 2.
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Update on Recent Developments in Communication and Swallowing in Multiple Sclerosis.多发性硬化症中沟通与吞咽的最新进展
Int J MS Care. 2020 Nov-Dec;22(6):270-275. doi: 10.7224/1537-2073.2020-023. Epub 2020 Dec 28.
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Slower decay of landfalling hurricanes in a warming world.在全球变暖的情况下,登陆飓风的衰减速度变慢。
Nature. 2020 Nov;587(7833):230-234. doi: 10.1038/s41586-020-2867-7. Epub 2020 Nov 11.

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