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多发性硬化症中沟通与吞咽的最新进展

Update on Recent Developments in Communication and Swallowing in Multiple Sclerosis.

作者信息

De Biagi Francesca, Heikkola Leena Maria, Nordio Sara, Ruhaak Leonie

出版信息

Int J MS Care. 2020 Nov-Dec;22(6):270-275. doi: 10.7224/1537-2073.2020-023. Epub 2020 Dec 28.

DOI:10.7224/1537-2073.2020-023
PMID:33424482
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7780699/
Abstract

Swallowing and communication disorders are common in persons with multiple sclerosis (MS). Both disorders are extremely variable and can have a major effect on health status and quality of life. This is why it is important to provide health care professionals who are working with persons with MS with tools to signal, assess, and treat swallowing and communication disorders. This synthesis gives an update on relevant and recent literature on swallowing and communication disorders, supplemented with current practice-based evidence. Studies on swallowing and communication disorders in MS are scarce: more and higher-quality research is needed. It should be emphasized that therapists need to focus on the patient's acquisition of skills to participate in daily life. This means that each patient requires an individual approach based on their own needs.

摘要

吞咽和交流障碍在多发性硬化症(MS)患者中很常见。这两种障碍极具变异性,会对健康状况和生活质量产生重大影响。这就是为何向为MS患者提供治疗的医护人员提供用于识别、评估和治疗吞咽及交流障碍的工具至关重要。本综述对有关吞咽和交流障碍的相关近期文献进行了更新,并补充了基于当前实践的证据。关于MS患者吞咽和交流障碍的研究较少:需要更多且质量更高的研究。应当强调的是,治疗师需要专注于患者获取参与日常生活的技能。这意味着每个患者都需要根据自身需求采取个性化方法。

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本文引用的文献

1
Brain volumetric correlates of dysarthria in multiple sclerosis.多发性硬化症构音障碍的脑容量相关性研究。
Brain Lang. 2019 Jul;194:58-64. doi: 10.1016/j.bandl.2019.04.009. Epub 2019 May 15.
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Management of dysphagia in multiple sclerosis: current best practice.多发性硬化症吞咽困难的管理:当前最佳实践。
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The effect of traditional dysphagia therapy on the swallowing function in patients with Multiple Sclerosis: A pilot double-blinded randomized controlled trial.传统吞咽障碍疗法对多发性硬化症患者吞咽功能的影响:一项双盲随机对照试验的初步研究
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4
A first investigation of tongue, lip, and jaw movements in persons with dysarthria due to multiple sclerosis.多发性硬化所致构音障碍患者的舌、唇和颌运动的首次研究。
Mult Scler Relat Disord. 2019 Jan;27:188-194. doi: 10.1016/j.msard.2018.10.116. Epub 2018 Oct 30.
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What speech can tell us: A systematic review of dysarthria characteristics in Multiple Sclerosis.言语能告诉我们什么:多发性硬化症构音障碍特征的系统评价。
Autoimmun Rev. 2018 Dec;17(12):1202-1209. doi: 10.1016/j.autrev.2018.06.010. Epub 2018 Oct 11.
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Expiratory and phonation times as measures of disease severity in patients with Multiple Sclerosis. A case-control study.呼气相和发声时间作为多发性硬化症患者疾病严重程度的衡量指标。一项病例对照研究。
Mult Scler Relat Disord. 2018 Jul;23:27-32. doi: 10.1016/j.msard.2018.04.010. Epub 2018 Apr 21.
7
Communication in Multiple Sclerosis: Pragmatic Deficit and its Relation with Cognition and Social Cognition.多发性硬化症中的沟通:语用缺陷及其与认知和社会认知的关系。
Arch Clin Neuropsychol. 2018 Mar 1;33(2):194-205. doi: 10.1093/arclin/acx061.
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Effects of expiratory muscle strength training on maximal respiratory pressure and swallow-related quality of life in individuals with multiple sclerosis.呼气肌力量训练对多发性硬化症患者最大呼吸压力及吞咽相关生活质量的影响。
Mult Scler J Exp Transl Clin. 2017 May 29;3(2):2055217317710829. doi: 10.1177/2055217317710829. eCollection 2017 Apr-Jun.
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Survival and cause of death in multiple sclerosis: a 60-year longitudinal population study.多发性硬化症的生存率和死因:一项60年的纵向人群研究。
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Language disorders in multiple sclerosis: A systematic review.多发性硬化症中的语言障碍:系统评价。
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