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针对不同步行能力水平的成年多发性硬化症患者社区活动能力的探索性研究。

An Exploratory Study of Community Mobility in Adults With Multiple Sclerosis Across Different Ambulation Levels.

作者信息

Giroux Carley, Sogoloff Barbara, Bergmans Lance, Bae Myeongjin, Vannostrand Michael, Kasser Susan L

机构信息

From the Department of Rehabilitation and Movement Science, University of Vermont, Burlington, VT, USA (CG, BS, LB, MB, MV, SLK).

出版信息

Int J MS Care. 2023 Jul-Aug;25(4):145-151. doi: 10.7224/1537-2073.2022-042. Epub 2023 Feb 27.

Abstract

BACKGROUND

The purpose of this study was to identify differences in community mobility in adults with multiple sclerosis (MS) at various ambulation levels.

METHODS

Seventy-one adults with MS completed a survey about their mobility impairment and avoidance of challenging mobility tasks. Individuals were categorized as having mild, moderate, or severe gait impairment.

RESULTS

Participants across the different functional groups significantly differed in perceived ambulation disability, fatigue impact, falls efficacy, quality of life, challenges with dual-tasking, and self-efficacy for community mobility. There were no significant differences between the mild and moderate gait impairment groups in crossing a busy street or going out in different ambient conditions. Significant differences were found between those with mild impairment and those with severe impairment in avoidance of various terrain elements, heavy manual doors, postural transitions, attentional situations, and crowded places. The only environmental dimension that significantly differed across all 3 groups was carrying 2 or more items, in which avoidance increased as ambulation worsened.

CONCLUSIONS

Avoidance behavior for particular environmental features can begin relatively early in the disease process. This underscores the need to further study mobility differences, community ambulation, and participation restrictions in adults with MS.

摘要

背景

本研究的目的是确定不同步行水平的成年多发性硬化症(MS)患者在社区活动能力方面的差异。

方法

71名成年MS患者完成了一项关于其活动能力受损情况以及对具有挑战性的活动任务的回避情况的调查。个体被分类为具有轻度、中度或重度步态障碍。

结果

不同功能组的参与者在感知到的步行残疾、疲劳影响、跌倒效能、生活质量、双重任务挑战以及社区活动自我效能方面存在显著差异。轻度和中度步态障碍组在穿过繁忙街道或在不同环境条件下外出方面没有显著差异。在避免各种地形因素、沉重的手动门、姿势转换、注意力集中情况和拥挤场所方面,轻度受损者与重度受损者之间存在显著差异。在所有3组中唯一有显著差异的环境因素是携带两件或更多物品,随着步行能力恶化,回避情况增加。

结论

对特定环境特征的回避行为可能在疾病过程中相对较早开始。这突出了进一步研究成年MS患者活动能力差异、社区步行和参与限制的必要性。

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本文引用的文献

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Perceptions on the value of bodily functions in multiple sclerosis.多发性硬化症中对身体机能价值的认知。
Acta Neurol Scand. 2018 Mar;137(3):356-362. doi: 10.1111/ane.12881. Epub 2017 Dec 3.

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