Division of Population Medicine, Cardiff University School of Medicine, Cardiff, UK.
Division of Population Medicine, Cardiff University School of Medicine, Cardiff, UK.
Patient Educ Couns. 2023 Oct;115:107893. doi: 10.1016/j.pec.2023.107893. Epub 2023 Jul 13.
We examined what matters to families about the healthcare provided to preterm or LBW infants in hospital and the community, to ensure that care meets the needs of infants and parents.
We searched databases to identify eligible studies examining the views and expectations of families. Study quality was assessed using the CASP checklist for qualitative studies. The GRADE-CERQual approach was used to assess confidence in review findings. Studies were sampled and data analysed using thematic synthesis.
222 studies (227 papers) were eligible for inclusion. 54 studies (57 papers) were sampled based on data richness, methodological quality, and representation across settings. Eight analytical themes were identified. Confidence in results was moderate to high. What mattered was a positive outcome for the child; active involvement in care; being supported to cope at home after discharge; emotional support; the healthcare environment; information needs met; logistical support available; and positive relationships with staff.
Although parents and family members reported a variety of experiences in the care of their infant, we found high consistency in what matters to families.
This review identifies approaches to improve experiences of parents which are consistent with the Family Centred Care model of healthcare.
本研究旨在调查家庭对早产儿或低出生体重儿在医院和社区中获得的医疗保健服务的关注点，以确保医疗服务满足婴儿及其家长的需求。
我们检索数据库以确定符合条件的研究，这些研究考察了家庭的观点和期望。使用 CASP 定性研究清单评估研究质量。使用 GRADE-CERQual 方法评估综述结果的可信度。采用主题综合法对研究进行抽样和数据分析。
共纳入 222 项研究（227 篇论文）。基于数据丰富度、方法学质量和不同环境下的代表性，选取了 54 项研究（57 篇论文）进行抽样分析。确定了 8 个分析主题。结果的可信度为中高度。重要的是孩子的积极结果；积极参与护理；出院后在家中得到支持以应对；情感支持；医疗环境；满足信息需求；提供后勤支持；与员工建立积极关系。
尽管父母和家庭成员在照顾婴儿方面报告了各种经历，但我们发现家庭关注的重点高度一致。
本综述确定了改善父母体验的方法，这些方法与以家庭为中心的医疗保健模式一致。
